communication, condescending twatbags, healthcare, mental health

My personal triggers from Amy Silverstein’s heart transplant saga…

Good morning, people. It’s about 10:00 AM, and I’ve already been kind of busy. My day started at about 5:00 AM, which is when I usually wake up nowadays. I can’t believe there was a time when I could sleep until noon. That sure isn’t the case today!

I got up to do my usual morning routine, then did laundry, to include washing the sheets. I have a love/hate relationship with washing the sheets. I love how fresh sheets feel, but I hate the process of washing them and putting them on the bed. I never got the hang of making hospital corners. Bill is home today and could help; he is an expert at hospital corners! But he’s teleworking, because he was kind enough to take Noyzi to the vet for a dental. I didn’t want to bother him. He did come up and help me put the pillow cases on, which of course is the easiest part of that chore. I decided not to do the duvet covers today, because that’s the most annoying task related to washing the bedding. I’m just not in the mood to fool with it today.

After that was done, I moved more of my massive music collection to the new computer. I got through the Ks, although it sure wasn’t easy. Went from Keb’ Mo’ to Laura Branigan. That took a couple of frustrating hours. Then I forced myself to stop, so I could write a blog post. When I did that, I realized I had a pretty good case of writer’s block, and nothing was urging me to write today. Too bad I don’t have that feeling more often, since I often feel like my blog posts cause a lot of avoidable problems… like strained family relations and unpleasant interactions with strangers. But then I realize that I have my supporters, too. Yesterday, one of them, regular reader “dle”, left me a comment on my review of Amy Silverstein’s book, My Glory Was I Had Such Friends.

In my brief comment exchange with dle, I mentioned a few parts of Amy’s book about her second heart transplant that triggered me a bit. I had wanted to address them in the review itself, but decided not to, because my review was pretty long. I had included comments about Silverstein’s first book, Sick Girl, that I thought were important. I know that sometimes I have issues with brevity, and people only have so much time and attention span to dedicate to blog posts. So I didn’t comment on the parts of Silverstein’s story that really disturbed me a bit and made me feel a lot of empathy for her situation. I guess I’ll do that today, since I have a bit of writer’s block.

In this blog, I have mentioned on more than one occasion that I have a real problem trusting healthcare providers. I experienced some traumas at the hands of doctors that have left me very nervous at the prospect of seeing them for treatment. I know it’s crazy, given my educational background. I used to work with doctors before I became an overeducated housewife. A couple of them were also my classmates in my public health graduate program. But there’s a difference between being “colleagues” with medical doctors and submitting to them for care. I know intellectually that most doctors are responsible and decent and do their best to provide excellent care. However, I have run into a couple of them that left me with lingering issues. Being in Amy Silverstein’s medical situation would be a special kind of hell for me. I probably would have given up on life many years before she finally succumbed.

The first part of My Glory Was I Had Such Friends that “triggered” me a bit was Silverstein’s story about how she needed a pacemaker. Because of her vast experiences with medical procedures over decades of care, Silverstein had an aversion to the drug, Versed. She didn’t want to be “put out” for most of her procedures. Getting the pacemaker was no exception. She wanted to be conscious for it. Her physician, Dr. Wayne, was vehemently against the idea. From the book:

She nods and turns to greet the doctor who’s just come in—a small, quick-moving man with wiry gray hair.

“I am Dr. Wayne. Hello, Mrs. Silverstein.”

“You can call me by my first name if you like. I’m Amy.”

“Hello, Mimi.”

“No, it’s Amy,” I say, and then immediately think to correct myself for fear that he might call me “Itsamy.”

Dr. Wayne’s speech is choppy, perhaps due to his jittery manner.

“Today I will put in a pacemaker.”

“Yeah, I guess that’s what you gotta do.”

“I’ll give you medicine for sleep . . .”

“I’m not going to sleep.”

“Not really sleep. Just very, very relaxed. Like sleep.”

“Nope. No sedation at all. I do everything without sedation unless it’s a surgery. This isn’t a surgery, is it?”

“Not exactly surgery, but—”

“Good then. No sedation.”

The doctor whirls away from the exam table and mumbles under his breath loud enough for the nurse and me to hear: “No sedation! For a pacemaker! Sheesh . . .” He heads into the hallway to scrub up. The nurse remains behind, tending to an array of syringes and small metal utensils.

“I don’t want to give anyone a hard time,” I tell her, “but I’ve had lots of experience staying awake through hard stuff. And I don’t like being put out.”

“You wouldn’t really be out. Just relaxed. We’d be giving you some Versed . . .”

Versed! No way. I’d like to ask her how many times she’s had Versed, because I’ve had it plenty and it’s a nasty sedative. Instead, I press my lips closed. Check your attitude, Amy.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 89-90). HarperCollins. Kindle Edition.

Amy has had enough experience with Versed to know that she really, really does not like it. And it’s her body that’s being worked on; her comfort should be paramount. However, the doctor turns out to be a nasty piece of work. Continued from the book:

That’s what Scott told me just before we headed out to LA. We had a long talk one evening, mulling the challenges we knew would be coming and trying to anticipate what else we might face. “If you’re going to die,” Scott said, “and let’s be honest, you might—you need to think about how you want to act at Cedars, how you want to hold yourself in the end. With your friends—do you want to be loving, or bitter and angry? And with the doctors and nurses—do you want to earn their respect for the way you’ve lived these twenty-five transplant years, or do you want to show how you’ve been wrecked by them? It’s all about how you want to be remembered,” he said.

This was not the first time that Scott had attempted to remind me of my better nature. There had been plenty of instances through the years when frustration and fear overtook me, transforming qualities like self-advocacy, determination, and attention to detail into alienating misbehaviors. The constancy and complexity of transplant-related illnesses would crescendo from time to time, to a point where it felt unbearable—and where it would imbue me with a distorted sense of self-righteousness: Give me a break—I can’t be bothered with decorum. I’m too sick. And then I would rage against Dr. Davis’s missteps, calling him inane, or I wouldn’t pick up the phone for days when friends called to check in, or I’d yell at Scott for no reason at all and then cry and cry and cry. Then came the heavy regret: “Scotty, I’m just so, so sorry . . .” and he would close his eyes and shake his head. “You’re dealing with unbelievably scary stuff, I know. But you’ve got to find a way to stop taking it out on the people around you.” If I didn’t, he said, I would send everyone scurrying away.

I tried to do better. With each successive medical crisis, I got a little more adept at keeping my fear from spiraling into anger and spurring me to lash out. But I found that the success of my efforts was only proportional to the health challenge at hand: the more life-threatening it was, the less I was able to contain my angst. What degree of self-control, then, would I manage to exert in the face of this retransplant? I was yet to find out. But it spooked me to notice that, in light of what awaited us in California, Scott had rephrased his usual advice about how I might carry myself in the hardest of circumstances. For the first time ever, he was framing his words in a context of finality, asking me not about how I might want to be perceived but rather remembered.

I just want to be remembered without everyone misunderstanding me. I know this doesn’t speak to the self-reflection Scott hoped for. But right now, this is what comes to mind as I contemplate how I might explain to this nurse my aversion to Versed. I know my stance is unusual; when patients hear that they’re getting a drug to help them relax before an invasive procedure, they see no reason to object. But long, hard-earned experience has taught me this: Versed messes with your mind. It’s a powerful, tricky sedative that makes you think you’ve slept through the procedure when actually you were awake the whole time. Versed is, simply, a forgetting drug, but its powers of erasure are imperfect. Somewhere in your mind (and certainly in your body) there is a flicker of awareness that something happened to you (for instance, you might have been screaming in pain throughout the procedure), but you can’t quite get at it, so an anxious ambiguity scratches at you and festers. There is a cost to not being able to access and process our own pain and suffering—some might call this post-traumatic stress. I’ve experienced it myself, and this is why I’ve come to insist on keeping things where I can see and process them—without Versed.

I share my thinking with the nurse.

She walks from the tray to my stretcher and lowers her voice. “I agree with you. And too much Versed isn’t good for your brain cells either.” She taps her head. “But Amy, I’ve never seen a patient do a pacemaker implantation without sedation. It’s going to be rough.”

“I hope you’re wrong. But thank you.”

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 90-91). HarperCollins. Kindle Edition.

Then, comes the assault by the doctor. This was the part that set me on edge, although I feel pretty sure that if I were Amy, I’d want the drugs. I’d rather be out cold for these kinds of procedures. Or, at least I think I would prefer to be. So far, I’ve been blessed with pretty good health and haven’t needed this kind of “care”.

Dr. Wayne stomps back in and comes to a stop by my left shoulder. “I’m going to have to give you a lot. Of lidocaine. Because you said no sedation. Sheesh.”

“Fine with me.” I don’t mind multiple lidocaine shots. I’ve accumulated three or four hundred of them for localized numbing in all the biopsies and angiograms I’ve had. From experience, I know that if the doctor gives the first shot slowly—alternating a bit of needle with a bit of lidocaine—subsequent injections will become quickly pain free.

BANG!

Dr. Wayne slams the first shot into the left side of my collarbone.

“Ow!”

“That hurt you,” he says.

“My gosh, yes. Ow. In New York, the doctor gives a little bit of lidocaine at a time so . . .”

“I said you would need a lot of shots. Because of no sedation.”

BANG!

This one feels like it has vengeance behind it. I clench my teeth, determined not to give in. BANG and BANG—two more in rapid succession.

That’s it.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 91-92). HarperCollins. Kindle Edition.

Imagine having a doctor who is noticeably ANGRY because a patient stood up for herself. And instead of realizing that it’s her body and her healthcare at stake, the doctor is cruel and deliberately causes pain, rather than trying to work with the patient and respect her wishes about how her body is treated… or at least trying to assuage her valid anxieties about the procedure. The story continues:

“Ow! Ow! Oh my God! I can’t take it!” I’m weeping now, and I can’t believe I’m crumbling this way. I don’t cry from pain. What pierces my armor this time is the frightening vulnerability I feel at the gruff hands of a masked stranger in a cath lab far from the one I’ve known for twenty-six years. Reciting poetry couldn’t possibly combat what is looming over my body at this moment. A nurse’s tender glance would bring me no ease. The reassuring touch points I’ve come to rely on give way to stabs of surprise—each one of them another fiery agony. I have never known cath lab procedures to be scenes of horror, but I feel myself here in the grip of a ghoul.

“It’s too much for you. Right?” Dr. Wayne glares.

“No, I’m strong as hell. I’ve been on a hundred cath lab tables. It’s you! You’ve got terrible hands—has anyone ever told you that? You suck at this! Just give me the damn Versed.” Oh, I’ve really let loose now. I sure don’t want to be remembered like this, but I’ve lost all control.

“Oh, now you want it? I have to call anesthesia. It will take, I don’t know, an hour. For them to get here. Because you said no sedation!”

I pause, taking a few seconds to muster a conversational tone. “You need an anesthesiologist to administer Versed? In my experience, the nurse just puts it in my IV—at least that’s how they do it in New Y—”

“In New York! In New York!” He galumphs away from the exam table, waving his hands over his head. The nurse follows, and I’m alone.

I’ve never been left alone in a cath lab before.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 92-93). HarperCollins. Kindle Edition.

What a fucking bastard! I hope she lodged a formal complaint against that man. The story continues, with Amy fretting because she’s alone in the cath lab, with a very flat pillow. Because of her heart condition, she has trouble breathing when she’s lying flat. So there she is, getting “medical care” that has left her traumatized, and will probably put her life in danger (moot now, since she recently passed away). She continues, having explained that she’s feeling woozy:

Within seconds, the green-clad people descend, ghoulish in their masks and puffy caps, gloves and X-ray shields. There are here to slice into my skin, slide their control wires into my heart. One of them pulls back the sheeting from my left shoulder, where scattered injection punctures still ooze blood onto my naked breast.

The Versed sweeps through my IV . . .

Silverstein, Amy. My Glory Was I Had Such Friends (p. 94). HarperCollins. Kindle Edition.

After the procedure, Amy is deliberately slow to recover, upsetting her friends and husband. She’s traumatized, terrified, and justifiably angry about how she was treated. Her husband’s response, when he realizes that she’s not responding promptly, like a “good girl”, is to get angry with her. But she’s just been assaulted by a “doctor” who deliberately hurt her because she dared to exercise self-determination.

The second part of My Glory Was I Had Such Friends that triggered me was when Amy found out that she had breast cancer and needed surgery. She, very understandably, got angry and upset with her doctor. Rather than listening to the doctor talk about treatment options, Amy stormed out of her office, leading the doctor to worry that Amy might be a danger to herself. Was it childish? Yes… but remember, this is a woman who had been dealing with this shit for decades. She was tired of it. From the book:

The ordeal occurred just three months before the bad-news angiogram (and four months before I headed out to California): a breast sonogram picked up a strange-looking spot in my right breast. I didn’t worry at first because soon after my first transplant, the regimen of immunosuppressive medicines caused benign fibroadenoma masses to grow in my breasts. They were easily spotted on sonograms and sometimes grew so large I had to get them surgically removed. But this particular spot looked different. When I asked the biopsy radiologist if she thought she’d just put a needle into something scary, she threw up her hands. “Gosh, this is a weird-looking one,” she said. “I don’t know what it is.”

It was cancer.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 145-146). HarperCollins. Kindle Edition.

Amy’s friend, Lauren, was involved in the drama that followed, after Amy got the news that not only did she need another heart transplant, but she also had breast cancer that would require major surgery. She continues:

When she reached me with the news, I froze. “Oh, come on! With all you’ve been through, this is easy stuff!” my breast doctor implored. She couldn’t have chosen more enraging words. I’d known this doctor since I started growing those golf ball fibroadenomas just after my first transplant, and I liked her a lot. But she was barking up a dangerous tree at a tragic moment by trying to turn my years of illness into a rallying call, when I was seeing it as a signal to raise the white flag.

“I’m not doing it,” I said. “I had a horrid open-heart valve surgery just a few months ago. And, frankly, my heart isn’t feeling so great lately. I’m not taking on breast cancer. I’m . . . I’m out.”

Ooh. Nice. I liked the feel of these words as they rolled off my lips for the first time—I’m out.

“You can’t quit now! You have to fight this. You’re just the kind of person who’s going to do great—”

“I’m out! I’m out! I’m out!” Wow, I loved the sound—and the sentiment. I’m free! I don’t have to do this anymore! For me, taking on an additional life-threatening illness was completely unfathomable. It was so beyond okay or understandable or doable or fair. “I gotta go now . . .”

“Go where?”

And this is where I made a really big mistake. “I’m leaving,” I said. “I’m getting in the car now. I’m not doing this anymore.”

“You can’t. You have to do this. Amy! Let’s talk! Would you come to the city and meet with me? I’ll cancel my afternoon . . .”

“Bye.”

I left. And then I was driving, blindly. My cell phone rang and it was Scott, telling me that my breast doctor called the local police because she’s worried about me. The police were at the house now, he said, and Lauren was on the way to meet them. He told me to go back home. “I’m out!” I cried, and kept driving.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 146-147). HarperCollins. Kindle Edition.

Amy drove some more to let off some steam. Meanwhile, the cops had broken into her house and ransacked her bedroom, even reading her journals. Her friend, Lauren, was there to deal with the cops, who were there to “save” her life from suicide… A woman who had already had one heart transplant, needed a second one, and had just been told she had breast cancer. She wasn’t suicidal. She was FRUSTRATED… and understandably so. But the cops had violated her house, all because her doctor sicced them on her. Granted, the doctor had to make the call, due to the law. If she believed Amy was a danger to herself or others, she had to call the police, or else face potential adverse legal ramifications if Amy came to any harm at her own hands. And yet, the scenario just seemed so ridiculous to me. Her friend Lauren explains:

“I get a call from Lenny and he says to go to your house because the police are coming. I don’t know if you’re there or not, but I race over,” she explains. “I pull up to your house and there are three cop cars and they are on your lawn—why they didn’t park on the driveway, I don’t know. I go to your door, and the police have busted through the window. I walk in and hear them in your bedroom, so I head upstairs and they’re rifling through your closet and drawers—clothes are everywhere. One of them has got your journal and he’s standing there reading it. I think to myself, I have a job to do. I have to protect Amy. And I dive into conversation with those cops, rambling on and on, pretending to be helpful. They ask me what color your car is, and I waste ten minutes saying, Hmmm, I don’t know. They ask if you were likely to head north or south, I tell them north—because I know you’re much more likely to go south . . .”

I get a call from Lauren, and I don’t pick up. Another call, and I don’t pick up.

“I keep trying your cell, but you won’t answer. The cops are asking me, ‘Would she hurt herself?’ and I tell them no. She got some really bad news and she wants to be alone. I know her well. She’s fine. But they tell me I have to call you again because they want you back here. They put an alert out on your car.”

Meanwhile, I call my breast doctor and the receptionist puts me right through. “Why did you call the police!” I shout. “It’s my choice to fight breast cancer or not. You’ve known me so many years, you’ve seen all I’ve been through—how can you force a decision on me? I can’t believe you did this!”

“I’m sorry, I’m sorry. I’ll call them back. It just sounded like you might do something . . .”

“I’m fine. I’m upset because . . . how many times and in how many ways can I be dying? I’m not going to drive off a bridge, for God’s sake! And even if I did, that would be my business.” I’m shuddering with anger.

“But I’m under legal obligation, Amy. I could get in trouble if I know you are going to hurt yourself and then you do.”

“Well, I’m not going to hurt myself. But I am not going to take on breast cancer either. I just had valve surgery. It’s my choice.”

“I’ll call the police and tell them everything is okay, but you have to come and meet me to talk. I’ll meet you at my house or at Starbucks near my office if you want. I just want to lay out what the treatment would be so you can make an informed choice.”

“Okay, I’ll meet you. Four thirty. Starbucks. Now call the police and tell them I’m fine!”

A few seconds later, Lauren calls again, and this time I pick up. She asks me if I’m all right. “I need time alone. I don’t need another person telling me I have to fight breast cancer, blah blah blah!” I tear at the zipper on my winter coat, tugging it down as I shake my shoulders out from underneath, frenzied. I am boiling with fury.

She tells me the police are there. My doctor hasn’t reached them yet.

“I heard. And I know everyone wants me to come home and be a good little breast cancer–valve surgery–heart transplant patient, just racking up the life-threatening illnesses and their shitty, half-assed treatments—”

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 148-149). HarperCollins. Kindle Edition.

I know a lot of people think Amy should be grateful to have so many people caring so much about her, but at the same time, I can hardly blame her for this reaction. It almost seems like a farce. She’s in such poor health, yet she has so much strength that people think she might off herself. It’s crazy. Lauren goes on to explain that while Amy is seething, the cops are listening. And she has to act neutral, while Amy is yelling at her, calling her “the worst friend”. Lauren then cleans up the mess and even gets Amy’s window fixed, after the police busted it to “save her life”. All because the breast doctor called the cops.

And finally, the last triggering moment for me was reading about how a pharmacist inadvertently told Amy that she had been enrolled in an experimental protocol to which she’d never consented. It ended with the pharmacist running out of the room in tears… From the book:

She had her eyes straight ahead on the screen, keeping up perfunctory conversation while skimming the dense pages. “We’ll be bringing all your meds into the modern age after your transplant. Now . . . um . . . you asked me about whether you can take . . . Oh, wait a minute . . .” She zooms in on some words that elicit a big smile. “Ooh, I see that you’re going to be part of our eculizumab study . . . wonderful!”

“Ecu-lizumab?”

“Yeah. Name’s a mouthful, right? I don’t blame you if you can’t pronounce it. I’m talking about the experimental treatment for your antibodies. You’re going to be part of our NIH study.”

What?

I’d heard a little bit about the study from Dr. Kobashigawa a few days earlier, and someone from the Cedars medical research team dropped off a thick binder filled with detailed information for my review. But this intravenous drug with the mouthful name was a chemotherapy of sorts and had serious side effects, including a significant risk of meningitis. Were I to participate, these treatments were not imminent (they wouldn’t kick in until the time of my transplant surgery). But I had already undergone another potent antibody remedy when I first arrived in California (bortezomib) that posed a risk of blood infections and death. The bortezomib treatments involved a series of direct injections into my belly and many of hours of antibody-cleansing plasmapheresis (plasma removal and replacement) through a thick catheter in my neck. Last I heard, though, the post-bortezomib state of my antibodies was not much better than before treatment; my chance of matching with a heart donor still remained at an inauspicious 14 percent. Feeling fortunate, though, for having at least evaded the dangers of bortezomib, I was not eager to risk another go-round with a second type of antibody treatment—especially an experimental one.

“You’re sure my name is on the study roster—already?” My voice rises.

She pecks at the keyboard, double-checking. “Yup, here you are!”

I jolt upright in bed. “But how can that be? I haven’t said yes!” Pressing my palms against my temples, I begin to reel. “I can’t believe this! Am I being steamrolled into the study?”

“No, no. But the team has decided—”

“The team? I’m the one who’s supposed to choose.”

“Of course you are, but—”

“I have a voice!”

“I didn’t mean to make you feel—”

“Just because I’m . . . sick . . . it doesn’t mean I don’t . . . have a say!” I’m choking on emotion now. Scott steps toward the bed and puts his hand firmly on my shoulder—Easy, let it go . . .

Not a chance.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 183-184). HarperCollins. Kindle Edition.

This part of the book reminded me of a book I’d read years ago, A Taste of My Own Medicine: When the Doctor Is the Patient, by Edward Rosenbaum, a physician who got cancer and suddenly found himself on the other side of the bed. The 1991 movie, The Doctor, starring William Hurt and Christine Lahti, was based on Dr. Rosenbaum’s book. Dr. Rosenbaum explained how scary and demoralizing being a patient can be, and how healthcare providers lose sight of how patients can feel disenfranchised when they submit to medical care. Especially when it’s delivered in a hospital setting.

Amy then explains why she had this reaction. She’d been in an experimental study before, and it led to a significant trauma. From the book:

I’ve come to think of this particular memory as the strawberry shortcut—a lesson that came by way of a pulmonary lab technician who said playfully, “Let’s take the strawberry shortcut,” when escorting me from the waiting room to the exam suite. It was 1988. I was in my second year of law school, and my doctor wanted to rule out all possible causes of my very apparent breathlessness. Heart problems seemed so much less likely than lung problems in a woman in her midtwenties, so he scheduled a progression of tests that began with pulmonary.

As I followed in the wake of the technician’s perfectly pressed white coat, turning and turning again through a seeming maze of narrow hallways, he called back to me over his shoulder a preview of what was to come. Apparently, I would soon be breathing in some—particles? Nuclear particles? I didn’t understand—I’d never had even so much as a strep throat culture in my twenty-five years of life—so I obeyed with some trepidation when he placed the clear plastic contraption over my mouth, nose, and a good portion of both cheeks. “We’re friends here, aren’t we? So just relax into it and breathe deeply,” he cooed, and I tried. But there was nothing about inhaling the particles he administered that made me feel friendly or comfortable. He noted my reluctance at once. “Oh, you’re going to have to go deeper than that, pretty,” he said.

Pretty?

My stomach muscles tightened with angst. I began to shake.

“In . . . and out. In . . . and out,” he coaxed, moving his face closer with each round of inhalation and exhalation until his lips and the tip of his nose were in line with mine, pressing up against the plastic.

I closed my eyes and I felt some tears fall. I’m trapped. My doctor can’t make me better unless I do this test. I’ve got to get through it. Come on, Amy, breathe . . .

“That’s it . . . niiiice,” the technician purred. “And again, for me . . .”

When the test was finished, I hurried off the exam table. “Hey there,” he said, reaching for the door handle before I could. “How about a kiss for the technician?”

“How about a handshake instead!” I snapped, surprising him with a sudden show of nerve. He murmured something about a hot tamale and grasped my hand.

A few days later, I filed a complaint with the hospital and was told there was nothing they could do since I didn’t remember the tech’s name. And besides, they told me, “Maybe he was just trying to help you relax.”

That was the start of my growing a backbone as a patient. Hell, if the same thing were to happen to me now, I’d respond directly with, Kiss? How about you kiss your job good-bye!

Fifty is so much braver than twenty-five, you see.

Silverstein, Amy. My Glory Was I Had Such Friends (pp. 184-186). HarperCollins. Kindle Edition.

I was never sexually harassed by doctors, but I did have one who left me very traumatized due to her being extremely callous. I wish like hell I had complained about her when the incident happened. I don’t know what would have happened. Probably nothing. But at least I would have done something… and that might have made me feel more empowered. I am fifty now… and I was 22 then. So this story really hit home and left me a little triggered. Amy continued:

Though today’s situation was quite different, it preyed on some of my greatest medical fears, those that had developed out of the strawberry shortcut incident and countless others over the years: feeling a lack of agency, feeling uninformed, and feeling taken advantage of. And this is why I felt no trepidation this morning when telling the transplant pharmacist that I wanted to speak with her supervisor: Dr. Kobashigawa. She logged out of the screen at once and backed away from the computer. “I’m sorry to see you so upset about this.”

“And I’m sorry for these stupid tears, but I can’t help it. I’ve learned the hard way never to turn off my brain and hand myself over. I’m not going to agree to ecu—whatever it’s called—without reading through the whole binder and making my own decision.”

“I understand. But keep in mind we’re just trying to help you, Amy. You’ve got antibodies that are going to pose a danger to any donor heart you might receive. You can’t be transplanted successfully without eculiz—”

“I can’t? Are you saying I don’t have choice? That I never really had a choice? Who told you that? Dr. Kobashigawa?” My fingertips fly to my forehead and I begin tapping, tapping. A rush of panic sweeps through me—Have I been duped?

She started toward the door, pulling nervously at the ends of her hair. It was apparent that Becky had let on more than I was meant to hear just yet, and that perhaps she might be in trouble for it. “I’ll, um, ask him to come see you.”

But the memory match had already struck and ignited. All of a sudden there were words in the air—my words—and they rang calm and clear at first, but then echoed back to me calamitous and full of smoky black, as if tethered to distant fires. Whatever I was saying was not of this moment; it was cumulative—and ablaze: “Wow, Becky, wow, wow, wow. As if I didn’t feel out of control to begin with, watching my pulse disappear day after day. Thanks a lot. You sure know how to make a dying person feel worse.”

“That wasn’t my . . . Oh, I am sorry!” she squeaked with panic, tears welling in her eyes. She quickly turned away and slipped out the door.

Silverstein, Amy. My Glory Was I Had Such Friends (p. 186). HarperCollins. Kindle Edition.

I did feel sorry for Becky, the pharmacist. I know she was just trying to be helpful. And I’m sure it’s a tough job, as today’s patients are often better informed and more outspoken. On the other hand, a lot of people would be calling Amy a “karen” (hate that term) for advocating for herself. Clearly, her issues stem from understandable and considerable trauma. And even though I could understand that a lot of people would find her behaviors very “karen-ish”, as someone who has also experienced medical trauma, I could hardly blame Amy for her response. She probably couldn’t help it.

I have had some good experiences with doctors since my last trauma. However, in spite of that, I have a hard time shaking those memories. It’s kind of like how Noyzi, the Kosovar rescue dog, spooks at sudden noises and movements. He’s had good experiences, but still reacts in an automatic way to those triggers. I’m the same way. I get extremely nervous just thinking about going through what Amy went through. So, when I read her book, I thought of her as brave, rather than entitled and ungrateful. She had backbone, even if she came off as abrasive. And again, I could hardly blame her.

In a way, my recent post about body shaming that got me on my relative’s shit list is sort of the same thing. I used to just take that sort of thing without too much comment. I don’t anymore, and some people think it’s offensive. But my reactions come from valid traumas of the past. I’m sorry if some people find my reactions upsetting, but they don’t come from a place of meanness. They come from trauma. I think Amy Silverstein’s reactions were the same thing. So, I kind of felt a kinship with her… and again, realize that she must not have been all bad. After all, she did have such friends. Wish I were so lucky… but at least I have a wonderful husband.

Well, this post has gone on pretty long, so I think I’ll end it and practice guitar for a few minutes. If you managed to wade through this long ass blog entry, I thank you. And if you managed to understand it on any level, I congratulate you. Until tomorrow….

Standard
complaints, condescending twatbags, narcissists, scams

Apparently, she’s playing social worker now…

The featured photo was taken May 10, 2002… the day I earned dual master’s degrees in social work and public health. Fair warning about this post… it’s probably going to come across as rude and offensive to some readers, because I’m “processing” again. Read with caution after the first two paragraphs. 😉

I am a little disappointed in myself today. It’s already almost 11:00 AM and I’m still sitting here in my nightie, listening to an old Conway Twitty song, and typing a blog post. I had such big plans for the holiday weekend. There are so many places around Wiesbaden that we haven’t yet explored. But we’re not doing that right now, because while we were having breakfast, Bill complained about how “shaggy” his hair is. And looking at it, I had to agree, his look was missing a certain sharpness. It had been awhile since his last haircut. I can cut his hair, but I don’t do as good of a job as the barber does.

So Bill went off to get a trim, and I’ve been migrating more music to my newer computer. I’ve been a bit surprised this morning. I had no idea how much Ella Fitzgerald I had in my collection– well over 700 songs! Ella was born in Newport News, Virginia, which is right next to where I was born, in Hampton, Virginia. I think that’s kind of cool. She was such a wonderful singer. I can’t say she’s one of my idols, but I sure do admire her a lot.

So anyway, it’s been awhile since I last upbraided my husband’s ex wife. She’s been pretty quiet lately, and I’ve had other things on my mind. I was actually thinking that maybe she decided to get off social media, but nope. She’s back on Twitter. And I couldn’t help but notice that, once again, she’s showing off her false persona to the masses. This time, she’s acting like a social worker.

Someone on Twitter was lamenting about being 45 years old and having to take care of both of her aging parents. The original poster shared a photo of herself looking really tired, yet still quite beautiful. She posted that she was having to take care of mother’s most intimate needs and is now exhausted.

Ex, in her attempt to fool everyone with her fake caring facade, posted this…

You absolutely must get home health care immediately or you will lose your sanity from lack of proper rest. I know you love them… but you cannot be their o my caregiver. Medicaid is another option to get assistance. Check with your local area agency and they can help, too! (she ended her advice with a couple of heart smilies)

All I can do is shake my head at this shit. Last year, she tried to get my husband’s stepmother to move in with her. I know she’s “hosted” her mother and her husband’s mother, too. And she has a “severely autistic” son, as well as two more “children” she claims are autistic and need her. Ex’s youngest child, by the way, will be 17 years old this year. But she doesn’t actually take care of any of these folks. It’s left to her adult daughters, especially to include older daughter, who will be 32 years old this year and still lives with Ex. She takes care of her brother. I get the impression that Ex just sits on her ass and watches Outlander.

Granted, I’m not there to see this in person. However, I have a pretty good idea of what goes on, because for years, I’ve heard about it from very reliable sources. I think Ex has a lot of nerve playing social worker/advocate to people on Twitter, when she doesn’t do fuck all for her own family! She just pays lip service about being there for her family. It’s a facade, and one that she only trots out to strangers. The people who actually live with her never see this kind, loving, wise side. She just tells them to figure everything out for themselves and then does her best to sabotage them and hinder their progress.

I probably wouldn’t be writing about this today, except we were reminded once again of how Ex insisted that she was the better parent and knew best… and yet my husband’s younger daughter had to find her own way to college out west. Younger daughter left home with two suitcases and nothing else. No money, no dishes of her own, no sheets for the bed… NOTHING. And if not for the intervention of a kind family from her church, she would not have been able to move out on her own. The way younger daughter tells it, the family arranged this without her input. They saw she had a need and fulfilled it. She never even asked them for that help. The fact that the family did that for her, tells me that Ex was acting in an obviously dysfunctional way in public.

Ex didn’t even want younger daughter to get a job when she was in her late teens. She did nothing to teach her about how to find work and make her own money. Instead, Ex made younger daughter get a GED, take online college courses for the financial aid (the excess of which she ripped off for herself and left younger daughter to repay), and never taught her the first thing about the world of paid employment. Learning how to earn money for one’s self is a basic life skill. Ex failed to teach it. And younger daughter frequently worked for free, doing babysitting and other jobs.

I remember back in 2006, Bill paid child support for Ex’s eldest son, who is her first husband’s child. He was an adult at the time– 18 years old. Ex was the one who had drawn up the divorce papers, and she had put in the language about Bill paying support until the kids were 22 years old, unless they met certain conditions. He paid for former stepson, but then it later became clear that the young man was just using Bill for money. Bill had planned to pay support for his daughters, too, but Ex– having seen how her son moved out with the money Bill was paying him directly– realized that would give her daughters too much autonomy. And she also knew Bill would not pay her directly anymore, once the kids were over 18. So she made it impossible for Bill to contact them, and then did her damnedest to clip their wings.

I can only sit here and shake my head in awe at younger daughter’s incredible resilience. She is a very kind and thoughtful person, and she obviously impressed people, because some folks from her church in New England helped her by “hiring” her to be a nanny in Utah. They paid for her to go on vacation with them and help with their kids– and the end of their vacation ended at just about the time school out west started. The church angels gave her some money, wished her luck, and friends helped her get from Utah to Idaho, where her college was. The whole thing was basically a ruse to free her from Ex’s clutches, so she could go to college.

Younger daughter showed up at her school with nothing to set her up for success. EX DIDN’T DO A GODDAMNED THING FOR HER OWN DAUGHTER! And she wouldn’t let Bill do anything for younger daughter, either. By that point, Ex had quit communicating with Bill and was doing her best to obliterate him from his daughters’ memories. Bill would have been there in person to buy things like sheets, dishes, and school supplies. Now, here Ex is on Twitter, playing the part of a kindly social worker for strangers, advising them on elder care and Medicaid. What complete bullshit!

I know some people will read this objectively and think Bill is at fault, too. And I wouldn’t necessarily blame them for coming to that conclusion. I wish to God Bill had never met her, let alone married and procreated with her. I wish I had been his first and only wife. I would have done so much better by his daughters. I wish we could have taken her to court and insisted on a change in custody when they were kids.

But the circumstances at the time made it seem impossible. There was no money for lawyers, nor the ability to take time off work to go to court. What sucks even more about this is that people tend to think that the parent who has custody is the better parent. It ain’t necessarily so. Bill absolutely would have been a better parent to his daughters than Ex was, because he has the capacity to love, and he genuinely cares about them. Ex only cares about herself.

I’m just glad that at least younger daughter will talk to Bill now. I’m glad he can help her now. Wish her older sister would get out on her own instead of giving her best years to her mother, doing the household chores, and taking care of Ex’s youngest kid.

It blows my mind that Ex feels so free offering kindly advice to people on Twitter, when she won’t even help her own children take care of their most basic needs. She didn’t even teach them the most basic life skills, like how to earn money. Like it or not, people need money to live. But Ex didn’t want her kids to have money, because money equals power… including the power to walk away. Thank God there were good people in the LDS church (which was another one of Ex’s ideas) who saw what was happening and were moved to help younger daughter.

This is narcissism. Ex could be the poster child for it.

I just needed to get that out. Maybe it’s not appropriate for me to be writing about this, but it really does gall me, and this is how I process it. I truly don’t care if what I write is embarrassing to Ex. Abusers thrive in secrecy. I suppose some of Ex’s egregious bullshit is down to legitimate mental illness. However, I think she knows very well that her conduct is wrong… because she doesn’t show the ugly side of herself to the masses. Her public persona is not what the people closest to her see.

You know, I realize that I’m not the most likable person myself, but at least what you see is what you get. I would not blame younger daughter for being extremely bitter, and yet she somehow manages to stay kind and genuinely caring. She’s like Bill in so many ways.

Sigh… rant over. I probably should go read my latest book for some new subject matter. If you managed to read this and maintain some objectivity, thank you for putting forth the effort. I appreciate it.

For you, Ex. Because your daughter is way too kind to do it.

Standard
communication, complaints, condescending twatbags, rants, slut shamers

You really don’t need to comment either way…

On this date in 2012, I took the featured photo in Cologne, Germany. We were on our very first “hop”, which took us to Germany, Austria, and Luxembourg. I spotted this sticker on utility equipment and snapped a photo. It fits today’s topic perfectly.

Happy Sunday, folks. It’s another pretty, late spring morning here, and already 69 degrees Fahrenheit, which is pretty nice. I know it’s hard to fathom to those of you in the southern United States, but it’s still a bit chilly in Germany. I don’t look forward to the hot, un air-conditioned days that are coming, but right now, the weather is getting more pleasant.

Our Nordic holiday is rapidly approaching. I have experienced Scandinavian and Baltic countries in the summer, and I know that it will behoove us to bring layers. I remember the first time we went to Norway, back in June 2009, and we both had to buy warmer clothes. Bill got two sweaters, and I got a hoodie and a sweatshirt. I loved the hoodie and was pretty sad when I lost it after our 2014 “hop” to France and Germany from Texas. Perhaps I’ll find a new one when we’re up there.

I’m kind of glad we’re going up north next month. I probably won’t be wearing a bathing suit in public. Maybe I’ll wear one on the cruise ship, but I’ll bring a robe with me. Actually, one thing I’ve noticed and really enjoyed in Europe is the less judgmental and shitty attitude people tend to have about other people’s bodies. This is especially true in Germany, where there are a lot of health spas in which being nude is a requirement. I’ll admit, as an American, it was hard for me to embrace the idea of being nude in a “public” place. However, once I did it, I found the experience very liberating. Nudity isn’t a big deal here, so you see all kinds of people at the spa. All of them are there for themselves, and it’s not a big deal if you don’t have a bikini or Speedo worthy body.

Yesterday, a friend shared the below post on Facebook. I liked it, so I decided to share it, too.

I added the comment, “Yup. Zip it.”

Now… I’m going to clarify. Personally, I don’t objectively think that every body is necessarily beautiful. However, I do believe that (almost) every person has basic worth. I do think that we should show basic respect to people, and do our best to preserve their dignity. I completely agree with the original poster’s statements that people don’t need to make comments about other people’s bodies, positive or negative. You really don’t need to comment either way. I honestly don’t see why people feel emboldened to make such personal comments to people, especially when they are total strangers.

A lot of my friends saw the above post and liked it. However, I did get one comment that I’m afraid has given me something to write/rant about this morning. It was actually a little embarrassing on many levels. A family member, seeing the above post, wrote this:

You look GREAT💕

In fairness, this family member is related by marriage. She’s married to my dad’s first cousin (my first cousin once removed– Granny’s nephew– and the son of my fabulous late Aunt Estelle, who was hilarious). She has known my parents for years, though, because she’s from the Tidewater area, and used to patronize my parents’ business. One time, we went to our annual Thanksgiving shindig and she was there with cousin Jimmy. She didn’t even know Jimmy was my dad’s cousin, and asked us what the hell we were doing there!

I’m not sure if this relative knew me when I was growing up. She probably saw me a few times, since my parents’ business was run out of their house. However, she hasn’t seen me in person since 2014. Moreover, it’s pretty obvious if you actually READ the post before reacting or commenting, that I am not the original poster. Anyway, I wrote this response, with a laughing reaction (though I kind of wanted to post an orange, angry reaction):

Uh…. That isn’t me.

My relative posted this:

🤣😂🤣oooops!

If my relative knew me better, she’d know that I never wear bikinis. I probably should wear them, since it’s easier to go to the bathroom if you have a two piece bathing suit. But when I do wear bathing suits, I prefer to wear one pieces. Anyway, I responded thusly:

When I go swimming, I’m usually nude. Plus, I could never grow my hair that long.

And this is the truth. In Germany, when I go swimming, it’s often at a health spa, and a lot of them are nude. So when I swim in Germany, I do often go swimming in the buff. When I’m not in Germany, I don’t wear bikinis. And I have never had long hair like the woman in the picture has. My hair simply won’t grow that long. I’ve tried.

My relative wrote:

I did notice her hair is longer than yours usually is!

Right. And did you also notice that she’s got darker hair than mine has been in years? She probably has a “better” figure than I have, too (although tastes differ). 😉 I was a bit perturbed and it was later in the evening, so I made one more response.

She’s also a bit younger.

People should be able to go swimming or whatever and not have people comment about their bodies. I like how it is in Germany. Nudity isn’t a big deal here, so you see people of all shapes and sizes, especially at wellness spas. Nobody cares. It’s very liberating.

This was my main point. You don’t need to make a comment of any kind about other people’s bodies. You don’t need to reassure someone that they look “great”. You don’t need to compliment them, nor do you need to tell them they’re too fat, too thin, or need to wear a bra, shapewear, or a girdle. Just let them live in their own skin in peace.

If you must comment, try to pay attention to other things, like whether or not they look happy. Stop focusing so much on the external appearances of other people– especially those you don’t know personally. Most of them won’t care about your opinions either way, and by keeping your mouth shut, you avoid embarrassing and traumatic situations with strangers.

My relative still didn’t get it. She posted this…

You could pass for that age…whatever that may be!

Well gee… thank you. But a compliment on my looks was not what I was hoping for when I shared that post, as much as I appreciate being complimented. It’s not that I don’t like being told I look young, or beautiful, or whatever else. I do like hearing sincere compliments. Sincere is the operative word, and really, compliments should come from someone whose opinions matter to me.

I did visit the original post, just to see what other people’s reactions to it were. Naturally, there were many comments about how “obesity isn’t pretty”. Some were from mansplaining males who expect women they deem unattractive to cover up. Some were, sadly, from women who harped on what’s beautiful and “healthy”. Others posted backassed things like, “I wouldn’t do it, but good for her.” A comment like that tells me that you’re trying to be “nice”, but you still disapprove. The woman in that photo doesn’t require your approval or your opinion. Just zip it, and mind your own business.

Everybody has a story. You have no idea what’s going on in that woman’s life. For all you know, she might have just lost a lot of weight. Or maybe she just gained a lot of weight. Maybe it’s the first time she’s been to the beach in years. Or maybe she visits the beach every day, and it’s her happy place. Who are you to intrude on her business with uninvited comments about her body? Why do you think she, or anyone else, should care what you think about her body? You’ve got your own body. Pay attention to that, instead.

I’ll be honest. I don’t like it when people make comments about my body. They almost never make me feel good, even when they’re positive. When they come from men, they make me feel skeevy. When they come from women, they make me feel bullshitted. And no matter what a person does, there’s always going to be someone who is critical. Even if everyone was an “acceptable” size for aesthetic purposes, there would always be someone out there with a criticism or a backhanded compliment. Seems to me that people really ought to just STFU about other people’s bodies and mind their own business.

Last weekend, I took some photos with Bill at a street food festival we attended. They turned out really nicely. Below is the photo currently serving as my profile picture.

Maybe I look “pretty” in this photo, but I would much rather someone say that I look happy.

One friend left a comment that I really appreciated. She wrote, “Great picture!” That’s really all anyone needs to say, if they say anything at all.

I know not everyone shares my opinions about this subject. My thoughts on this probably come from being raised by people who were very image conscious and constantly criticized me for not looking “good” at all times.

I can remember my dad grabbing me by the head and forcibly combing my hair as he claimed it “looked like a rat’s nest.”

I can remember my mom looking at me with disdain and saying, “Why don’t you go put on some makeup?” Alternatively, when I got dolled up, she’d pull out the camera for a photo… as if it was such a rare and momentous occasion that it demanded to be preserved for posterity’s sake.

I can remember both of them giving me endless shit about my weight when I was a teen and a young woman, even as I flirted with eating disorders. My dad called me names. My mom tried to bribe me with new clothes, as she pleaded with me to lose weight. It made me feel unloved, ugly, and unworthy, and eventually led me to depression bad enough that I saw a psychiatrist, who also fat and appearance shamed me (but did at least find the right antidepressant).

It took years after that to stop going on starvation diets as I constantly made derogatory comments about my body to anyone who would listen. I’m sure that was as tiresome for other people, as it was not helpful for me. I don’t want to go back down that road.

Years after my last appointment with that psychiatrist, I asked for his notes to be sent to me, because I needed to give them to the Army for an EFMP screening. I made the mistake of looking at what he wrote about me. He made quite a few comments about how I wasn’t losing weight, and how I looked “garish”. I guess he felt my clothes were too “loud” for being my size (about a 14 at the time). He gave me medication that was supposed to be used for migraine headaches and seizures for an off label use– it caused appetite suppression. He was obviously very disappointed when it didn’t cause me to lose scads of weight. (This experience, by the way, is the main reason I don’t go looking for people’s opinions about me or this blog. I’d probably rather not know.)

I already had little trust or regard for doctors at that point in my life, mainly due to the very disrespectful and traumatic way I was treated by an Air Force OB-GYN at my very first gyno appointment. When I read those notes by a psychiatrist, who was supposed to be helping me with depression, I trusted them even less. That doctor’s notes should have indicated things like whether or not I was appropriately dressed, or adequately groomed for the occasion. Comments about my weight might have been fair enough, but only in terms of my health. My personal makeup and clothing style should not have factored into my records at all. Using the word “garish” to describe me was completely inappropriate. I think he had a bias against people he deemed to be “too fat”, and felt entitled to share them with patients who came to him for help.

When I was younger, maybe I would have appreciated fake compliments about how “good” I looked over rude comments about body image. But today, at almost 51 years of age, I’d much rather people just focus on what’s important… and what’s important is NOT what my body looks like. Because if you think about it, people who body shame are basically expecting everyone who doesn’t meet their standards to just hide away somewhere until they’re more suitable for public view. That’s not a fair thing to ask of anyone. Moreover, most of the people who make those kinds of comments aren’t exactly hot shit themselves. 99.9% of the time, you really don’t need to make a comment at all… just zip it, and leave the person alone to enjoy their lives. By keeping your mouth shut, you will keep them from experiencing unnecessary trauma, and you will keep yourself in good karma. Just my thoughts.

And… just to end this post on an amen, the wonderful singer, Jane Monheit, posted this on Twitter in 2019:

I would also add… please don’t give people unsolicited advice, either. Especially on something as personal as their body image. If someone wants your advice or input, they’ll ask for it.

Standard
condescending twatbags, Duggars, religion, social media, stupid people

According to The Transformed Wife, I’m doing at least one thing right…

Here’s a disclaimer for the dense… This post is strictly tongue in cheek. Of course I don’t agree with The Transformed Wife’s dumb world views. However, I do kind of live my life in the way she’d approve of… well, except for my love of beer and raunchy movies. And there’s also the fact that I never managed to spawn.

Hidey ho, y’all. It’s Wednesday again. I’m trying to keep smiling, because tomorrow Mr. Bill goes off on another lengthy business trip. I’ll be sitting here alone in my “mansion”, twiddling my thumbs. But I can at least smile a little at one thought. According to The Transformed Wife (aka Lori Alexander), I’m doing at least one thing right in life.

It’s no secret that I don’t get out much on my own. It’s not because I can’t go anywhere. I have a car, money, and three nice cities I could easily explore if I had the inclination. When I was a younger woman, I probably would happily hop in the car and go downtown for shopping, tourism, lunching, or whatever. I might try harder to make local friends to hang out with, too.

But the older I get, the less interested I am in killing time in places where I can spend a lot of money or get into trouble. 😉 I’m also sad to report that I’m not very good at making real friends. In this nomadic military/contractor lifestyle, one tends to see a lot of people come and go… and not everyone can take my personality. At almost 51 years old, I won’t be changing it for anyone. I mean, I could try to change it, but that would probably mean I’d wind up with depression again. So, I gotta be me.

Bwahahaaha… I may belch, fart, and cuss like a truck driver, but I love my husband very much. I am also a damned good cook… however, I have trained Bill to do the cooking. I did teach him a lot of what he knows, though… 😀

What this means is that I stay home a lot. I’m often barefoot, too. I’m not pregnant, and never will be, because I’m about to turn 51. But I do stay in the home and try to keep up with basic housekeeping tasks. Today’s chore is washing the sheets, which are currently in the dryer (edited to add: Now they’re done and on the bed). Since I washed the duvets last week, I’m just doing the sheets today. That’s a treat for me. Since I made music videos yesterday, I never got around to practicing guitar. By the way… today is my third anniversary of guitar playing. I’m not a great player yet, but I’ve mostly been teaching myself, with help from Fender Play.

Too bad I never had kids. But I can take heart. By The Transformed Wife’s standards, I’m doing okay. For about twenty years, I’ve avoided most of the places on her list of evil places in today’s featured photo (screenshot). Her list is incomplete, though. I noticed someone in the Duggar Family News Group mentioned that The Transformed Wife left off the one item that made it most possible for women to leave the home… SHOES! Yeah. Let’s ban shoes for the ladies. That’ll keep ’em home!

The Transformed Wife has got to be one of the world’s biggest hypocrites. It’s not like she lived her life in the way she says women should be living theirs. She condemns social media, yet she gets her message out via social media. She says women shouldn’t work, yet she writes books and blog posts. She has quite a few books for sale on Amazon. Weirdly enough, they seem to get a lot of high ratings… I did read the one star reviews from Amazon raters on one book. I was surprised to see that quite a few were written by people who apparently had studied the Bible and, apparently, took Lori seriously enough to actually buy her drivel. I was expecting to see more comments from the more modern ladies who complain about her in the Duggar Family News group.

I’m sure it’ll come as no surprise to my readers that I certainly don’t agree with Lori Alexander’s thoughts on the best way to live. I think her advice is problematic for many reasons. The main reason it’s problematic, though, is because it’s unrealistic for the vast majority of people living in the 21st century… at least in countries where there’s a high standard of living. Most families with children can’t survive on one person’s paycheck. Aside from that, a lot of women want to work. They find fulfillment in having a career. There is NOTHING wrong with it, nor is there anything wrong with NOT having children. Not everyone is a believer in Christianity or other religions, or Lori’s warped, extremist interpretations of Christianity. She is certainly not an expert on Christian living, either.

I will say this, though… I’m impressed by Lori’s ability to get people to pay attention to her. She has managed to sell books, in spite of not being a particularly skilled writer (in my humblest of opinions, anyway). Even though a lot of people are mocking Lori, she has managed to carve out a niche… a purpose, if you will. Maybe her purpose is to amuse, or maybe it really is to inform or instruct. But nobody has to follow her advice or agree with her opinions. I mainly just find them hysterically funny and way out of touch with reality. Maybe they should scare me more, though, since there does seem to be a vocal minority of Christian extremists who are longer on fire power and dogma than they are good sense and decency.

I’ve heard that Lori doesn’t allow a lot of trolling on her social media accounts. Many Duggar Family News members have posted on her Facebook page and reported that she promptly blocked them. However, a quick look at her page right now shows that some people are getting their derisive messages out to the masses. Here’s a comment one person made… Edited to add: I guess that was an old page that she abandoned. The links in the first and next paragraphs are to her current page. Too bad. My hopes have been dashed! I’m keeping the below image, though, because I did learn from it.

Well, at least I learned a new word by looking on Lori’s (fake) page…

Below is a screenshot from Lori’s current page. Isn’t it interesting that she’s posting this on social media? Does she do it from a computer, a tablet, or a phone? I’m so curious.

I guess Lori still doesn’t mind if women read and write, as they give up their cars.

I wonder what Lori would think about my marriage. This year, we’ll celebrate 21 years. It’s mostly been wonderful, in spite of my complaints about Ex and what not. Bill and I are a very good match, and I know I’ve been a good wife to him. It has nothing to do with religion, though. It has to do with mutual respect, regard, compatibility, and sincere friendship. Bill and I want the same or similar things, and we both work hard to achieve them together.

Well… I know a lot of people would like to see Lori Alexander banned from Facebook. I wouldn’t go that far. I think it’s kind of sad that she sees women as second class citizens who need to be totally submissive to their husbands and pumping out babies. But that’s just her opinion, and obviously, some people agree with her opinions.

Part of living in a free society is allowing people to have and express their views. Those who want to shut her down are not much better than the “Taliban-esque” folks who want women to be barefoot, pregnant, handmaid-like wives. So, while I am not a fan of her viewpoints, you can count me among those who do not want to see The Transformed Wife canceled. I just hope those who pay attention to her on a regular basis have the wisdom to realize that a lot of the ideas in what she posts are unworkable and unrealistic, particularly in first world countries. And it’s not likely to lead to true happiness or productivity. Just my two cents… Maybe Lori wouldn’t think I was doing right, though, since I was “selfish” when I was younger and wasted time in graduate school instead of having babies…

But then, it’s probably better, by her yardstick, that people like me don’t breed. 😀

Standard
animals, complaints, condescending twatbags, rants, sexism, social media

Some people should always wear a bra… over their MOUTHS!

The featured photo represents the judgmental attitude some people have about an obvious lack of undergarments on women… but, to be clear, it’s not MY attitude.

Once again, I’m amazed by the things people feel emboldened to comment about, especially to perfect strangers on social media. The vast majority of people who make shockingly rude or offensive remarks would never have the nerve to say those things to people’s faces. But online, they feel quite free to sound off, sometimes over things that are really none of their business. Like whether or not to wear certain undergarments, or how to take care of a beloved animal family member.

I follow a Facebook page run by a lady who has a mini horse as a service animal, rather than a dog. I don’t know this person at all, but I like to follow her page, because I think it’s cool that she has a service horse instead of a service dog. It makes good sense to have a horse as a service animal. They usually live longer than dogs do, and they’re bigger and sturdier, which can be very helpful for those who need help standing up. However, a lot of people don’t realize that mini horses can make excellent service animals. I think it’s great that she so generously shares photos and videos that educate people about having a service mini horse.

Some people have been following the story of “Flirty” the miniature service horse for a long time. They know the lady’s story well, and have watched her progress with her mini horse. Other people simply like to chime in, even though their comments are ignorant and offensive. Such was the case this morning, when I read about how Flirty’s mom had a new outdoor paddock built with a privacy fence. This is not an enclosure where the horse spends all of her free time. It’s just a small yard for her to go outside, eat some grass or hay, and maybe play with some toys.

Flirty’s mom was obviously excited to show off the new paddock for her mini horse. Yes, it’s small, but she’s a mini horse, and there’s plenty of room for her to move around. It’s bigger than the stalls where a lot of full sized horses stay. And she doesn’t spend all day in the paddock. It’s just another place for her to hang out with less supervision.

Several people were commenting on how inappropriate the paddock was, as it’s enclosed with a tall privacy fence. More than a couple of people wrote that she should have had windows put into the privacy fence so Flirty could look out. Flirty’s owner explained that she didn’t want windows because she didn’t want people or other animals messing with her horse, trying to feed her things she shouldn’t eat, like grass clippings.

Horses should NOT eat grass clippings, because they can cause serious health issues that can make them very sick or even lead to death. A lot of people don’t realize that if a horse gets a bad stomach ache (colic), they can die. Grass clippings can conceal poisonous plants that horses shouldn’t eat, because the cut grass mixes with other plants and covers their taste. Mowed grass clippings also ferment, which causes them to put out gas. A horse that eats the clippings can soon end up with gas that they can’t get rid of. Horses can’t vomit or burp, so built up gas in the gut can be deadly for them. It can lead to bloat, laminitis (founder), colic, or even botulism.

Flirty’s owner also wrote that there are dogs in the neighborhood who run loose and are capable of jumping lower fences. She doesn’t want them messing with Flirty and possibly hurting her.

The comments about the fencing were annoying enough, but what prompted me to write today’s post are other offensive comments made. Flirty’s owner showed herself in her video. She was wearing a t-shirt, but was obviously not wearing a bra. I counted at least three comments from women demanding that she put on a bra. See below:

Holy no bra…

put a bra on wow

Wear a bra please.

I was glad to see Flirty’s “mom” tell these women to mind their own business. Contrary to what they might have heard, bras aren’t something women are required to wear. A lot of us women wear them because they help support our boobs and maybe make them look nicer in clothes. But plenty of us, myself included, don’t like wearing bras all day. They can be uncomfortable. I remember my mom had grooves in her shoulders from wearing bras. I don’t have them, because I only wear bras when I’m going out somewhere. But honestly, if I (or any other woman) didn’t want to wear them at all, that should be my choice and my business. I would tell anyone who complains to quit staring at my boobs.

Besides the comments about Flirty’s “mom’s” lack of a bra, other people were claiming that the new enclosure was “cruel”. One person even had the audacity to write this comment:

Do her a favor and let someone who can properly care for her adopt her. I think you’ve done your best to do what you can but you don’t have the proper set up for her to have a happy life for a horse and this is really sad.

Really? I just don’t know where people get their nerve. This person is a complete stranger and only knows what she’s seen in the posts on Flirty’s page about what her actual “set up” is. To me, Flirty appears to be happy, healthy, and much beloved. And obviously, Flirty provides valuable services to her owner, who is kind enough to share information and educate the public about service horses. It would be one thing if Flirty appeared to be in poor health. But she looks very well taken care of to me, and I spent many years with horses in my life. No, I’m not a horse expert, but I do know what a healthy horse looks like. Flirty is adorable, and she’s obviously doing fine.

I have to say, Flirty’s “mom” was a lot nicer to that rude commenter than I would have been, if she’d made a comment like that to me. It would be Taylor Swift time for sure. 😉 This was Flirty’s mom’s response:

You realize that the accepted stall size for a mini horse is 6×8, right? And some minis don’t get turnout from that? Go bug those people, if you need to complain about horse welfare. 

She will get daily supervised turnout time in the larger yard. She will have toys to play with in this paddock. She is not unhappy.

I tend to get very annoyed with people who make uninformed comments about horses and their welfare, because a lot of them either don’t know what they’re talking about, or feel like their comments will be effective. A person who is truly abusive isn’t going to care about their input. A person who loves their animals, as much as Flirty’s mom obviously does, is just going to be offended. I highly doubt that Flirty’s mom has plans to do as the commenter suggested and let someone else adopt her service animal. That’s just a ridiculous thing to write or say, and it’s simply not gonna happen.

Janis Ian shared this in July 2020 and the annoying comments surged forth…

On another note, I searched Facebook for more comments about people who don’t wear bras. The first result that came up with Janis Ian’s page, and a two year old post about how face masks are the “new bras”. There were over one hundred boot licking posts from followers about how wonderful face masks are, and how they are a necessary evil, like bras are. Thank GOD that didn’t turn out to be true on a permanent basis. Hooray for science, and effective vaccines, because even if the masks were helpful at the beginning of the pandemic, I don’t want to wear them for the rest of my life. But I probably shouldn’t read too many of those comments, either, because they’re also pretty triggering, and God knows I’ve vented plenty about masks!

Well… I guess I’ve yammered on long enough about this. I think I’ll end this post and dive into my new book. Have a good weekend y’all. I plan to spend mine braless for as long as possible. 😉

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