ethics, healthcare, memories, Neighbors

Repost: Perpetuating the genetic nightmare…

I am reposting this piece from August 30, 2017, because it goes with the book review I reposted today. It appears as/is. Special thanks to Leevan Jackson who made the featured photo available through Creative Commons.

I have written a few times about my childhood neighbors, people who lived across the dirt road from us in Virginia.  In 1980, when we moved to Gloucester, they were a family of four.  There was a mother, father, brother and sister.  The father did not live at home.  He was in his early 30s and lived at the local psychiatric hospital in Williamsburg because he was suffering from Huntington’s Disease.   The mother was raising her children, twelve year old Michael and nine year old Leslie, by herself. 

In 1980, Michael was also suffering from Huntington’s Disease, having inherited the defective gene and developed the disease much earlier than most people with Huntington’s Disease do.  He died in 1982.  His and Leslie’s father died a couple of years after that.

I was eight in 1980.  I met all of these people when I was a child.  Leslie’s mother worked for my dad for several years until Leslie’s paternal grandmother died and Leslie’s mom inherited some money.  Leslie’s mom bought her own picture framing business and competed against my dad.  The business eventually failed.

Leslie and I weren’t close friends, but we did grow up together.  My parents included Leslie and her mom on a couple of family trips.  In 1985, I remember we all went to Kitty Hawk, North Carolina together.  I seem to remember Leslie and her mom coming with us to Natural Bridge, Virginia once, too.  I grew up waiting for the bus with Leslie and used to dog sit for her mom when they’d take trips to the Smoky Mountains.  Leslie was bright and talented and probably could have done some great things had she not been doomed to get Huntington’s Disease while still fairly young.

Leslie died in 2010, having battled the disease for several years.  She was 39 years old.  She’d given birth to three kids.  One of them died in a freak accident in 1995.  Leslie’s little daughter, just two years old, was accidentally run over by Leslie at the local Walmart.  For some reason, Leslie had allowed the little girl to stand up behind the driver’s seat.  If I recall correctly, she was just coasting forward to the drink machines and, for whatever reason, decided not to put the kid in a car seat.  Leslie had inexplicably left the car door open and the girl fell out and ended up under the car’s tires.  Her older child, then just three years old, was also there.  In 2012, when he was 21 years old, that child would also die in a car accident.  I have to wonder if the accident was really an accident or if the young man had started getting symptoms of Huntington’s Disease and decided to commit suicide. 

In 1996, Leslie had her third child, another son.  He is the only one of her children still living.  I have never met Leslie’s youngest child, but I know his family well.  I also know his dad, since he was in my class in school.  In the 80s, Gloucester was the kind of place where everyone knew each other.  I also knew of Leslie’s older son’s family, since his grandmother used to clean my parents’ house. 

Last night, I decided to look up Leslie’s sole surviving son.  I see that he recently became a father.  I have to wonder how much exposure he got to his mother when she was sick.  I didn’t see Leslie during those years because I left our hometown, but I do remember meeting her father and seeing her brother on a daily basis.  I remember what Huntington’s Disease looked like at an advanced stage.  It’s absolutely devastating.   

I just started reading a book about a woman who married into a family with the Huntington’s Disease gene.  The woman fell in love with her husband before he knew his mother had Huntington’s Disease.  She was dating him when he and his three older sisters found out why their mother wasn’t around when they were growing up.  She’d been in a psychiatric hospital.  The family patriarch wasn’t much of a father figure, so it was left up to the eldest daughter to take care of everyone.  Somehow, the four kids grew up not knowing that their mother had a genetic disorder.  I’m probably halfway through the book so far… The author decided to play the odds and have a son with her husband.

I learned in the book I’m reading that famed songwriter, Woody Guthrie, had Huntington’s Disease.  He had eight children, five of whom died young.  His second of three wives, Marjorie Guthrie, started what would eventually become the Huntington’s Disease Society of America.  Marjorie had four children with Woody, including famous singer-songwriter Arlo Guthrie.  Woody was married to his third wife for just a year before they split; he died in 1967 at age 55.  Woody was never really treated for his disease.  People thought he had schizophrenia or was an alcoholic, due to the extreme mood swings the disease caused.  Because he was famous, his death brought awareness to Huntington’s Disease.  It looks like Arlo and two siblings have escaped their father’s fate.  Today, I very much enjoy listening to music by Arlo’s daughter, Cathy, who plays ukulele in the duo, Folk Uke, with Amy Nelson (Willie Nelson’s daughter).

One of Woody Guthrie’s most famous songs…
Arlo Guthrie performs “Alice’s Restaurant”…
Cathy Guthrie and Amy Nelson performing as Folk Uke.

Every child who has a parent with Huntington’s Disease has a fifty percent chance of developing the disease.  Huntington’s Disease, although genetically perpetuated, is not like cystic fibrosis.  With CF, both parents must have the genetic defect.  Even then, a child born to parents carrying the CF gene has a one in four chance of getting cystic fibrosis, a one in four chance of being clear of the gene, and a two in four chance of being a carrier.  With Huntington’s Disease, it’s a one in two chance.  And if you have the gene, you will get the disease and likely die from it.  There is no treatment or cure for Huntington’s Disease.

A few months ago, I wrote a post about the ethics of knowingly passing along defective genes.  That post was inspired by Zach and Tori Roloff, stars of the TLC show Little People Big World.  They’d just had a baby and some people were saying that they shouldn’t have, since Zach has achondoplasia. Their son, Jackson, also has achondoplasia, which is a type of dwarfism.  For the record, I will say that dwarfism is not quite the same thing as something like CF or Huntington’s Disease.  A person who has achondoplasia can be basically healthy, though abnormally short.  CF and Huntington’s Disease are very serious and debilitating.

I think Huntington’s Disease, in some ways, is crueler than CF is.  Many people with CF are sick from babyhood.  They grow up sick, although some sufferers are much sicker than others.  They often know from a young age whether or not they will be affected by CF. 

A person with a family history of Huntington’s Disease can start life completely normal and not get sick until they’re approaching middle age.  They can develop lives, start families, have careers, and ultimately be stricken by a disease that makes them lose control of their bodies and their minds.  People with Huntington’s Disease grow up wondering if and when it will strike and whether or not they should get tested for the gene.  If they get tested, the news could be good.  They might not have the gene.  Or it can be bad; they have the gene and will eventually get very sick and probably die young.

Leslie’s family was devastated by Huntington’s Disease.  It seemed the gene in her family was worse than some others.  I remember hearing that her grandfather, whom I never met, had the disease.  He’d been adopted and never knew he had a genetic anomaly, so he and his wife, Vashti (whom I did meet), had a family.  I know that besides Leslie’s dad, at least one other sibling got the disease and died young.

I remember my mom telling me, quite emotionally, that Leslie’s mother should have had her daughter’s tubes tied when she was a baby.  I explained to my very practical mom that it would have been unethical to tie Leslie’s tubes.  What if she had been born clear of the gene?  There was a fifty percent chance that she had the defect, but there was also a fifty percent chance she didn’t.  She could have lived a completely normal life.  In 1971, when Leslie was born, I doubt the technology was there to know.  By the time genetic testing was available, I’m sure Leslie didn’t want to know.

I wish Leslie’s grandson much luck.  I truly hope he isn’t going to be afflicted by this terrible disease.  Life is a crap shoot.  He has an aunt and uncle who may or may not have had the genes for Huntington’s Disease and still died very young.  Not having the misfortune of being burdened by a genetically passed disease myself, I can’t even know what it’s like to live with the knowledge that I’m doomed.  Hopefully, Leslie’s son and grandson have escaped Huntington’s Disease.  That disease is a fate I would not wish on my worst enemy.  On the other hand, if Woody Guthrie hadn’t had children, we would be missing out on some great music.

I’ll write a review of the book when I’m finished with it.  It’s amazing what provides food for thought…  And it’s also crazy that I know so much about someone I’ve never met.  It’s not the first time this has happened, either. 

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humor, music

Catching the “musical flu” and spreading it around…

My friend Ken Turetzky, pumping his own gas…

I should preface this by saying that Ken and I are only the most casual of Facebook friends. I have never met him in person, although he did reach out to me about twelve years ago, when I wrote a review of musical comedian Red Peters’ album, Best of Red Peters Comedy Hour, Volume 1. Ken’s song, “Her Shit Don’t Stink” was featured on that compilation. It reminded me of Bill’s ex wife, who was at that time, pushing a false narrative that her shit didn’t stink. Anyone with their eyes open and nose unstuffed knew the truth, though, and those who weren’t aware would soon become aware as they came of age.

Years later, I care a lot less about Ex than I used to… Bill’s daughters are now grown women and we’re no longer subsidizing Ex’s household to the tune of $30,600 annually. However, we have become aware that for all of Ex’s gas pumping, she was mostly full of hot stinky air. Enough said about that, although there’s a lot I would really like to write. I won’t, though. Not in this post, anyway. Instead, I want to write about something totally unrelated– except I wish I could have helped spread the musical flu to Bill’s daughters.

Yesterday, my sister sent me a private message, asking if I subscribe to Apple Music. I wrote back that I don’t, mainly because I prefer to own my music rather than renting it. Also, I read some disturbing accounts of Apple Music overriding people’s private music collections. I have some rare stuff that I managed to get from Napster back in the day. Those were the days of dialup, so you know I spent a long time downloading those things. I don’t want to lose them by allowing Apple Music to invade my machine. I would imagine that Apple Music has fixed this issue, but I still prefer to buy rather than rent, particularly when it comes to music. I have so many tracks that it would probably take a year to listen to everything, anyway.

My sister, on the other hand, does use Apple Music. She wrote that she heard a song by the jazz player, Michael Franks. She hadn’t really liked him much, but got hooked on this song that came on Apple Music. I told her that I have a similar problem. I’m the kind of person who remembers really obscure songs from many years ago and tries to find out who did them. Sometimes, it takes years. I got tickled by my sister’s comments about Michael Franks, because it turns out that one of his songs was a track I obsessively “hunted down”.

I was first introduced to Michael Franks’ banal style back in the year 2003. Bill and I hadn’t been married a year. We lived in Fredericksburg, Virginia, in a cheap apartment, because that was what we could afford. We decided to go to the Army Birthday Ball. I needed a formal dress for it, so I drove to a mall in Northern Virginia to go shopping. It was probably Springfield Mall, which is where I used to go shopping when I was 6 or 7 years old.

Eureka!

I was in a department store trying on dresses, and this song by Michael Franks came on. I didn’t know who Michael Franks was, of course. I just remember the song and its monotonous, mind numbing chorus, “Don’t touch that phone.” repeated by female singers over and over again. I don’t even remember liking the song that much. I just remembered the chorus. It stuck in my head for years. I had no idea the name of the song or who sang it, but I relentlessly searched until, finally, I found it. And even though I didn’t love the song, I ended up downloading the album.

My sister and I kept chatting and it occurred to me that she has really had an enormous impact on my musical tastes. It’s almost like she was carrying a kind of “musical flu” bug. Although she is not the sister closest to me in age, I shared a room with her when I was a little kid. I was exposed to a lot of what she liked. My sister famously introduced me to the magic of Kate Bush. She also introduced me to James Taylor, The Police, and Dead Can Dance… as well as the hilarious stylings of Ami Arena, who can’t sing, but is funny as hell.

One of my favorite songs by Kate Bush. I was introduced to her when my sister bought Bush’s 1982 album, The Dreaming, when I was about ten years old. Years later, I bought the album myself, and have since bought it a couple more times.

Back in the early 90s, when I worked as a summer camp as the cook, I had a week off mid summer. My sister invited me to visit for a few days. While I was visiting her in Northern Virginia, she took me to Ellicott City, Maryland. We went shopping, and she introduced me to the band, Dead Can Dance. I remembered one song in particular and liked it, but it was about sixteen years later that I finally broke down and bought the album it came from. It’s still awesome music, even though the album is probably 30 years old by now.

This song stuck in my head for years until I finally bought the album. It’s still a great track… it doesn’t age.

During that same trip, I was exposed to Amy Arena and her sarcastic and very funny brand of music. Amy Arena can’t sing, but she’s witty and snarky and I enjoyed her very much. My sister played Amy’s album and we shared a laugh over the irreverent lyrics. Years later, I bought her CD, too…

She’s a certain king of gap toothed woman… I’m a gap toothed woman, too.

Then my sister told me that both Dead Can Dance and Amy Arena were introduced to her by a guy she used to date– a German dude by the name of Bernd, who played in a band that did live music at a restaurant where my sister used to wait tables. That restaurant, name of Whitey’s, is now long defunct. But for years, it was a great place in Arlington for live music, beer, and junk food. And the funniest part of all is that back in the 90s, when I had to get a food handler’s card to work in food service in Williamsburg, Virginia, I had to watch movies about food safety. One was made by the public health bureau in Virginia and they had actually filmed at Whitey’s. I immediately knew it was Whitey’s, because that place had a big sign that read “EAT”. It was unmistakable.

Both charming songs that you should learn…

When my sister told me about Bernd introducing her to that music, it occurred to me that Bernd had influenced me, too, even though I never met him. Although my sister hasn’t seen Bernd in years, he passed along the musical flu to her, which she then passed to me.

And I have influenced Bill, by sharing the music with him. I have also shared stuff with people on the Internet whom I don’t know. A couple of months ago, I wrote a post about Rush Limbaugh’s death. In that post, I shared a video by the awesome band, Folk Uke, fronted by Willie Nelson’s daughter, Amy, and Arlo Guthrie’s daughter, Cathy. The video was of Folk Uke singing “Shit Makes the Flowers Grow”. I discovered Folk Uke when I lived in Georgia and I had downloaded Willie Nelson’s “children’s” album (quoted, because Willie gave up on the children’s part of that album about halfway through). Amy was featured heavily on that album and I liked her, so I went searching on YouTube for more of her music… and I found Folk Uke. Now, I am a devoted fan…

I used Willie Nelson’s version of “Rainbow Connection” for MacGregor’s memorial video. This song was on Willie’s “children’s” album, which featured his daughter, Amy, half of Folk Uke! I don’t know why, but there’s something about Willie’s take on “Rainbow Connection” that touches me.

When I met Bill, he was pretty limited in his musical tastes. He liked industrial, progressive music, and shunned anything vaguely country. But I think he had the idea that country music was nothing but the pink sequined pop stuff his ex wife listens to… He had not been exposed to bluegrass or classic country music, or outlaw country. It wasn’t long before I had him turned on to people like the Infamous Stringdusters…

I actually discovered them while watching a morning show in Murfressboro, Tennessee. Ever heard a U2 song done quite like this?

And then, thanks to my constant ear to YouTube, I found the likes of Todd Snider and Paul Thorn, both awesome musicians who are entertaining, talented, and fun…

Story of my life… or at least it was when I was at Longwood.
Damn, I want to see him play. If you have a raunchy sense of humor, listen to this.

Last summer, I was on Facebook, and Keb’ Mo’ shared a track that he was listening to. He had played on guitarist’s Lee Ritenour’s compilation album, 6 String Theory. I looked at the album and quickly downloaded it. Then, noticing that there was a cover of Sting’s song, “Shape of My Heart”, I alerted my friend Andrew. I think he was skeptical at first, but then he decided to check it out. Sure enough, I had guessed right that Andrew would like the cover– he’s a big Sting fan, like I am. But this was a great cover done by other people.

Thanks to Keb’ Mo’, I found Lee Ritenour and a new take on Sting.

Speaking of Keb’ Mo’. I’ve been trying to see him play live for years. I have tickets that were supposed to be used on November 16th, 2020. Obviously, that didn’t happen, and the show has been rescheduled three times at this writing. I think it might go on in September, if enough people get COVID-19 vaccines. I was introduced by Keb’ Mo’ by Martha Stewart, of all people. I bought an album she made for new parents. It had really lovely pop music that would appeal to babies and grownups alike, and Keb’ Mo’s song, “Infinite Eyes”, was on it. I liked it fine, recalling that I had heard Keb’ Mo’ on a Lyle Lovett cover of “Til It Shines”, a Bob Seger cover, and liked him then, too. Then one day, when we still lived in Fairfax, Virginia, Bill and I were having lunch at Austin Grill. They were playing some really great music over their sound system, and I heard Keb’ Mo’s unmistakable voice. He was singing “Folsom Prison Blues”, a song originally by Johnny Cash. I loved it, so Bill and I went to a Border’s to see if I could find the album there– it was still the era of CDs, after all.

Well, I didn’t find Keb’ Mo’s cover of “Folsom Prison Blues” until many years later, but on that day, I came home with, like, three of his CDs. And I quickly became a big fan of his music. Now, one of my favorite songs by Keb’ Mo’ is this song…

I love this song… it’s like Bill and me. He gladly indulges my musical obsession. But it’s just one of my favorites by Keb’ Mo’.
This song is more like the reality of my life… 😉 Especially the line about the dog shitting on the floor.

I could do this all day. In fact, thanks to COVID-19, I’ve got little else to do… although I will admit that the above video makes me want to practice guitar. This post does have a point, though. I don’t know how it is for other people, but I tend to catch musical influences like the flu. I hear something, like it, buy it, and use it to find other stuff I love. And then I spread my musical flu to everybody else… even people I don’t know. Just like people I don’t know spread it to me.

I caught Robert Randolph & The Family Band from Eric Clapton. They opened for him at a concert Bill and I attended, and were a hell of a lot better than Clapton was.

And finally… as I sign off, here’s a plug for my alma mater. This morning, I donated $550 to the music department, not because I was a music major, but because the music department at Longwood University literally changed my life. And I really enjoyed this concert, featuring one of my former professors, Dr. Charles Kinzer. His wife is also a professor at Longwood. She used to be my accompanist, and now she teaches piano. This morning, as I watched the jazz concert, it occurred to me that these folks have also spread the “musical flu”, and still do– even 27 years after I graduated.

Anyway… I long for the days of live music again. I love to discover new stuff and spread it around. Bonus points if the music is also funny. And now, it’s time to play with my guitar. Maybe someday, I’ll play it for public consumption, and spread even more musical flu. At least it’s a kind of infection that doesn’t kill anyone.

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celebrities, obits, politics, racism

Rush Limbaugh is finally dead… shit makes the flowers grow.

A few months ago, my husband lost a “friend” over his “hatred” for Rush Limbaugh. I put quotes around the words “friend” and “hatred”, because I’m being facetious. Anyone who knows Bill knows that he doesn’t hate anyone. He doesn’t even hate his ex wife, who probably deserves his hatred more than anyone on the planet. The point is, my husband isn’t a hater. But he never liked Rush Limbaugh. Neither did I.

Last night, we found out that Rush finally kicked the bucket at age 70. He’d been suffering from lung cancer, having announced his illness in February 2020.

Back in October 2020, Bill was labeled a hater by a former friend because he had noticed that the very organ that had allowed Rush Limbaugh to spread hatred and bigotry toward large groups of marginalized people was also going to be the death of him. Bill had posted his thoughts about Rush’s illness on his Facebook timeline, and some of his friends went freakin’ nuts. One even accused him of being a “bad person” for stating this:

I know what I’m about to say is the result of unskilled thinking, but this appears to be an example of Karmic Justice. The organ used to spew years of hate, vitriol, and self-centeredness will be his undoing.

We weren’t rejoicing in Rush’s illness in October, and we’re not rejoicing in his death now. I don’t generally celebrate when people die, even people I think of as highly contemptible, and worthy of disdain or even outright hatred. I think Rush Limbaugh qualifies as someone who, in life, was highly contemptible. And while I’m not particularly happy that he’s dead, I am relieved that he won’t be spreading his toxic negativity, ignorance, and bigotry anymore. He won’t be saying or writing hurtful things to or about people who aren’t like him and don’t share his opinions.

In the aftermath of Rush’s death, we’ve also seen yet another falsely attributed quote arise from the dead. If you’ve been on Facebook lately, you’ve probably seen people sharing this meme.

According to The Atlantic, Mark Twain NEVER SAID THIS.

I know a lot of people like to share these kinds of cute and clever memes, and many people don’t actually care who said it. I care, though, because I like to give credit where credit is due, and I don’t like false attributions. So where did this quote come from? According to the article from The Atlantic I linked above, no one important actually said or wrote it in that precise manner. Alex Eichler, the person who wrote the article for The Atlantic, writes:

Matt Blum at Wired has the fact-check: the quotation actually comes from Clarence Darrow, the lawyer of Scopes Trial fame. Here’s a fuller version of the quote, which appears in Darrow’s 1932 work The Story of My Life:

All men have an emotion to kill; when they strongly dislike some one they involuntarily wish he was dead. I have never killed any one, but I have read some obituary notices with great satisfaction.

Clarence Darrow

I know some people are glad Rush is gone. Some are actually jubilant about it. And I would never tell them they don’t have the right to feel whatever it is they feel. I’m not in a group that Rush openly mocked, unless you want to call me a liberal. I’m not actually that liberal, but I don’t like the way the Republican party has gone in recent years. I think their embrace of both evangelical Christians and Donald Trump is confusing and wrong. And Republicans often say regrettable, heartless things to people who are in trouble and need help.

Case in point. Yesterday, I read about former Colorado City, Texas mayor Tim Boyd, who basically went off on his constituents for begging the government for help. Texas, as you probably know, is in serious trouble right now, thanks to a terrible winter storm that has disrupted the power grid. People are suffering because of power outages. Some people are even dying! They’re either freezing to death, or poisoning themselves with carbon monoxide by doing things like running their cars in closed garages or using barbecue grills indoors to generate heat. But Mr. Boyd, proud Texan conservative he is, had this to say in a poorly written and now deleted Facebook post:

Typical Republican ASSHOLE!

And then he continued with this:

To be clear, I don’t agree with issuing death threats or even so-called “cancel culture”, but what the hell reaction does Tim Boyd expect? He was an elected official and it was his JOB to help his constituents and show some fucking compassion!

I’ll bet Tim Boyd is sad that Rush is dead. I’ll bet Boyd was a Limbaugh fan. I don’t know for certain that he was, but what he posted is the same kind of hateful, mean-spirited shit that Rush Limbaugh was spewing for YEARS on the airwaves. And ignorant, compassion challenged people who are deeply saddened that the raucous voice of their belief system has died don’t seem to understand that Rush hurt a lot of people with his snarky, hateful rhetoric.

This has been a very difficult year for so many people– from the deaths and illnesses caused by the pandemic, to the many natural disasters, to the massive job losses, and complete upending of of normal life for everyone. It’s really sucked on many levels. And so, when an elected official like Tim Boyd mocks and lectures people for their valid complaints, it stings a bit. Rush Limbaugh was of the same ilk, and people like Tim Boyd looked up to him. He had no compunction about saying awful things to and about anyone, especially people who have historically suffered and been marginalized by privileged people.

Seriously…

Let me remind Rush’s supporters of a few things. Rush Limbaugh mocked Michael J. Fox for having Parkinson’s Disease and accused him of exaggerating his symptoms. Rush Limbaugh called women “sluts”, and referred to Barack Obama as the “magic negro”. And he wouldn’t have thought much of me, either…

Bwahahaha… maybe he wouldn’t have thought of me as “overeducated”. But I don’t think that Rush was a very good judge of intelligence.

Anyway… I’m not glad Rush is dead. I don’t care enough about him to rejoice in his death. Besides, everybody has to die sometime. It was simply his time to go. I’m not going to celebrate his death. But I’m also not going to shame or blame anyone who is glad to see him gone. I figure they have their reasons, and many of those reasons, while perhaps hypocritical, are understandable. We all have our own karma to tend.

Bye now.. enjoy the next life..

In other news, our heating went out last night. It’s not as bad here as it is in Texas, but I am a bit chilled. Hopefully, the landlord will have it fixed soon, so my hands, feet, and nose won’t be so cold. And Bill has to go away for three weeks next Saturday. Hopefully, he won’t bring any COVID-19 viruses back with him. Otherwise, people might be cheering about my death.

So long, Rush… You served a purpose and now your work is done. And, as Folk Uke reminds us, even shit has a purpose.

“You’re not good for nothin’…”
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humor, music

All-beef Patty…

This has been a pretty low key Labor Day weekend. We usually try to go away when we have long weekends, and Labor Day is prime traveling time. We haven’t been on a Labor Day trip since 2018 because last year, we lost Zane over Labor Day weekend, and this year, there’s COVID-19, our recent big trip to Austria, Italy, and Switzerland, travel shaming (although none of my “friends” are brave enough to shame me yet), and the fact that Bill needs to build up more leave. Also, we’re hoping to have a new dog soon, and acquiring him will probably require some time off for Bill.

I did try to find somewhere close for us to go, as all of the formerly “safe” countries around us were turning red on the COVID-19 tracing map. But then it just seemed like a big hassle and expense that I didn’t care that much about. So I gave up looking, and settled in for a long weekend at home. I think today, we may venture to a store to see if we can find chairs for our TV room. On the other hand, going into the IKEA, especially while wearing a mask, is not very appealing to me. I hate IKEA under the best of circumstances. I don’t really like the Scandinavian style, the fact that we have to assemble everything, and the massive crowds of people in there– or the way people get herded through the show room. There are other furniture stores in Germany, of course. Maybe we’ll find one of those.

Anyway… sometime yesterday afternoon, after I’d done my guitar practicing for the morning and written a blog post, I headed downstairs. Bill was out back, sweeping the steps to the basement. Our house, like a lot of German houses, has a “mother-in-law” apartment, and there’s a separate entrance through steps to the basement. We have a tall fence around the backyard, though, so we never go in and out that way. The steps were full of detritus blown there by the wind. We also did some minor garden maintenance. Bill pulled up some very undeveloped carrots and picked some of the parsley he grew. Our zucchini plant was the big producer this year, and I don’t like zucchini all that much.

Then Bill made dinner. I had the music going, and while I was sitting there, I heard the opening strains of the song “Starfucker” by a duo called Folk Uke. Folk Uke consists of Amy Nelson and Cathy Guthrie. They are the daughters of Willie Nelson and Arlo Guthrie. They are also hilarious. One of my favorite songs by them is called “Shit Makes the Flowers Grow”.

Simple melodies, irreverent lyrics, and lots of cussing. My kind of music and my motto for living.

I didn’t hear “Shit Makes the Flowers Grow” yesterday, but I did get a mighty kick out of “Starfucker”.

Kind of a similar melody, with easy chords. I probably could play this myself.

The lyrics to this are just classic. Check them out…

[Verse 1]
They call her All-Beef Patty
She’s got her eye on my daddy
She’s comin’ at him like a trucker
She’s a starfucker

[Verse 2]
I’ve been trampled by the tramps
They’re not wearing any underpants
Ooh yuckers
Starfuckers

[Chorus]
Aim for the stars
Aim for the stars
Aim for the stars

[Verse 3]
Well, they’re trying hard to charm me
But they frighten and alarm me
They’re the salivation army
A bunch of starfuckers

[Verse 4]
And when you wish upon a star
Well, it makes a difference who they are
And you hope that they’re a sucker
If you’re a starfucker

I just want to hang out with these two and giggle. We’re about the same age. It seems like we have similar thoughts on life, too. Nowadays, if I don’t laugh and crack irreverent jokes, I might cry. Here are a couple more funny numbers by Folk Uke.

“Just get down on your knees…”
Cathy, I’m gay for you… Awww… But Cathy doesn’t share Amy’s ardor.

I would love to go to one of their shows. Sadly, the fucking virus has made it impossible for such merriment. This morning, I read about how a wedding in May, in which 65 people attended, caused over 140 new COVID-19 cases, which led to three deaths. Among the affected were residents in an assisted living facility and inmates in a jail, both many miles away from where the wedding occurred. An epidemiologist for the Maine CDC said COVID-19 is like glitter. You open it in the basement of your house and somehow, it ends up in the attic. Interesting analogy…

So I’m content to listen to Folk Uke videos instead. The song below has a bittersweet effect on me. This song was playing as we drove Zane to the vet last year for the final time. The melody is sad, but the lyrics are witty and loaded with zingers. Somehow, it seems fitting that this would play as we took Zane to the Rainbow Bridge. He was a funny dog. ETA: Actually, it was a different song that was playing– “Try to Say Goodbye”.

Cathy tells a funny joke at the beginning.

This year has sucked on many levels. It hasn’t totally sucked for me personally, but for the world at large, it’s been pretty bad. I’m glad Folk Uke is around to make me laugh randomly, when one of their funny little ditties ends up playing on my HomePod. I love that they don’t take anything seriously. More people need to be like that… although I hope they haven’t run into any male versions of All-Beef Patty.

Now… off to eat breakfast with my wild and crazy husband.

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dogs, musings

After the thrill is gone, he’s gone to a better place…

I always pay attention to the music that plays when Bill and I are on our way to or from a euthanasia appointment. It may seem weird that I do this, but music makes up part of my psyche. It’s important to me. So I listen carefully just before and after I lose a pet.

In 2012, when we lost our dog, MacGregor, we were on our way to North Carolina State University Veterinary School to attend his death. On the way there, the song “Far Side Banks of Jordan” by Alison Krauss and the Cox Family came on my iPod. That song goes like this…

I believe my steps are growin’ wearier each day
Still I’ve got another journey on my mind
Lures of this old world have ceased to make me wanna stay
And my one regret is leavin’ you behind

But if it proves to be his will that I am first to go
And somehow I’ve a feelin’ it will be
When it comes your time to travel likewise, don’t feel lost
For I will be the first one that you’ll see

And I’ll be waiting on the far side banks of Jordan
I’ll be sitting drawing pictures in the sand
And when I see you coming, I will rise up with the shout
And come running through the shallow waters, reaching for your hand

Through this life we’ve labored hard to earn our meager fare
It’s brought us trembling hands and failing eyes
So I’ll just rest here on this shore and turn my eyes away
Until you come, then we’ll see paradise

And I’ll be waiting on the far side banks of Jordan
I’ll be sitting drawing pictures in the sand
And when I see you coming, I will rise up with the shout
And come running through the shallow waters, reaching for your hand

I’ll be waiting on the far side banks of Jordan
I’ll be sitting drawing pictures in the sand
And when I see you coming, I will rise up with the shout
And come running through the shallow waters, reaching for your hand, hmm

It seemed like MacGregor was telepathically comforting us, even though logic tells me it was a coincidence.

You’d have to know MacGregor to know how significant this song seemed as we drove to his euthanasia appointment. He was very much a country dog– mostly beagle and basset hound. He was afraid of strangers, but if he knew you, he was the most awesome, hilarious, funny dog. And he was a very devoted friend.

After MacGregor died, we listened to music on the way home to Zane. About twenty minutes after we set his spirit free, this song by Rhonda Vincent came on the iPod.

It was a gathering of some 300 people
In the little church the crowd began to swell
Quite a send off for a simple country farmer
For many loved and knew the old man well

And as his bride of 60 years came forward
She bravely walked to where his body lay
A hush fell over all that stood around her
She smiled through tears as she began to say

I will see you again
For this isn’t the end
You’re my forever friend
And I will see you again

Ever since a simple carpenter from Nazareth
Walked the mountains and the shores of Galilee
Ever since he died and rose again on Easter
Death doesn’t have the same old victory

Tonight I’ll lay my head upon his pillow
And cry until the breaking of the day
But even in the pain of separation
There’s a hope inside my heart that lets me say

I will see you again
For this isn’t the end
You’re my forever friend
And I will see you again

Jesus, He made a way
There is coming a day
So I will hold on ’til then
And I will see you again

I will hold on ’til then
And I will see you…again

I’m not a very religious person, but this was playing on the way back from seeing MacGregor’s entry into the next world… I found it very comforting.

Yesterday, when we lost Zane, I played the iPod again. On the way to appointment, there was a song by Folk Uke. It was definitely not a religious song. However, on the surface, it seemed kind of appropriate. It was called “Try to Say Goodbye”. Folk Uke is a very irreverent band, and this was not a comforting song.

If you knew Zane, this might seem appropriate… He was kind of a wise ass, even as he always tried so hard to be good.

On the way back from the appointment, I noticed the Eagles were playing… and it was this song, of all things…

All day, I got condolences from people paying respects in the wake of Zane’s death. Some were very heartfelt, loving, and kind. Some were pretty tone deaf and borderline offensive. I mostly tried to give people the benefit of the doubt. A lot of folks just plain aren’t good at comforting others. They don’t know what to say, but feel like they should say something. Most of the time, they offer thoughts and prayers, condolences, or just plain write “sorry”. These thoughts are probably better received offline, because about 80% of communication is non-verbal. But in today’s Internet connected world, we’ve lost the ability to communicate non-verbally. If you’re typing on a computer, you miss out on seeing the other person’s facial expressions and body language, which offers so much more of a clue as to what they really mean and whether or not they really mean it. So those words are not particularly comforting. They show that someone has tried to make an effort to be kind and sympathetic, which I do recognize. But are they meaningful, wise, or soothing? Not really, if I’m honest.

Well… I mostly cut people some slack. I appreciate that people were trying to be kind. We are taught that when someone experiences the painful loss of a loved one, we should be sympathetic. If one manages empathy, that’s even better. But a lot of people just don’t get the concept of empathy. Many people don’t have the sensitivity or the time for that, or they don’t know the person well enough to know how to respond. I get that. I really do. It means something when a person makes a sincere effort, even if the effort is a bit bumbling.

However, I think the comment that kind of cut me to the quick was one that came from a family member who typed, “He’s gone to a better place.” I do think I know what she was trying to convey, although more than once, she’s claimed to be an atheist. If she’s an atheist, then no, she probably doesn’t believe he’s “gone to a better place.” Either way, “a better place” is separated from me. She’s basically said my dog is “better off dead”, which is a really shitty thing to say… although I don’t think that’s what she meant.

It’s kind of akin to Donald Trump’s massive gaffe a couple of years ago, when he tried and failed to comfort a young soldier’s wife whose husband was killed in Nigeria. Trump said something along the lines of, “He died doing exactly what he wanted to do.” Basically, it sounds like that means he’d rather be sweating in Nigeria dodging bullets than being at home with his loving wife and their children. What Trump probably meant to convey was that the soldier had willingly signed up for the military because he wanted to defend the country and be of service. However, people join the military for all kinds of reasons. Maybe he believed in the mission in which he gave his life. Maybe he didn’t. He died with honor, though, doing what he agreed to do. And he was many thousands of miles away from his wife and babies when he did it. I’d like to hope he would not have preferred being in Nigeria over being with his family. But we don’t know. Trump didn’t know, either. His words were not comforting or particularly kind. They were thoughtless and insensitive.

As to my relative and her choice of words… well, I am not surprised. She isn’t known for being particularly empathetic. This particular relative, on the day we buried our grandmother, mused aloud if maybe I wasn’t my father’s biological daughter. She cited the fact that I have blonde hair, blue eyes, and a lack of freckles, while Dad was dark haired, dark eyed, and freckled. Also, my dad and I didn’t get along very well, although we did love each other. Fortunately, 23 and Me has put that particular question to rest.

It stung when I read my relative’s words, though, although I do understand that she was trying to be comforting. It would have been better if she’d said, “his suffering is over now” or “you were kind to help ease his way” or something like that. Telling me that my dog has “gone to a better place” sounds like it means that he’s better off dead, away from me and Bill, than at home with his loving family. And when those words come from someone who claims she doesn’t believe in God or the hereafter, they are especially hollow and meaningless.

Zane loved us. It was very clear that he did. Although he didn’t fight death, I doubt he really would have preferred dying over being with us. Is he at the Rainbow Bridge? I’d like to think there is such a place, although logic tells me there probably isn’t. But I do know that he’s no longer sick, exhausted, in pain, or suffering. He doesn’t have trouble breathing. He’s not bleeding internally. He doesn’t feel the frustration of not being able to do what he’s always been able to do. He was a dog who loved to run and play. He had a wonderful sense of humor, and he loved to snuggle in bed with us. In the last weeks, he stopped being able to do those things. He no longer has to live with the frustration of not being able to enjoy soft beds (because they made breathing too difficult), long walks (because he didn’t have the energy), good food (because cancer killed his appetite), or sitting in my lap (because he no longer had the strength, stamina, or coordination to jump up into it). Even if he’s not at the Rainbow Bridge, he’s no longer conscious of the things he could no longer enjoy. That’s a blessing.

This experience has reminded me to be more careful about what I say or write to people who have experienced the loss of a loved one. It’s better to be helpful than harmful. If I can’t be helpful and kind, it’s better not to say anything at all. Even though I love to write, I don’t always have the right words… And I don’t always have to say anything. A lot of people didn’t notice/didn’t comment on Zane’s death yesterday. Although it would have been nice if more of my family members had cared enough to comment, I think it’s better that people keep silent if they don’t have the right words. I’m no longer very close to my family, mainly due to my vehement rejection of Trump and my love for swearing and raucous humor. So they don’t follow me and they don’t know… As for my friends, the ones who really know and truly care about me had the right words. They were enough to make me feel loved. While I do appreciate the condolences left by people who don’t know me so well, I was reminded that when it comes to words of comfort, sometimes less is more.

Incidentally, I think Arran is grieving a bit. This morning, he was lying in Zane’s usual spot, looking forlorn. This is going to be an adjustment for all of us.

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