ethics, healthcare, law, modern problems, poor judgment

Medical freedom… or medical freedumb?

Today I reposted a 2017 era article from my original Blogspot version of The Overeducated Housewife blog. That post was written in a time of blissful ignorance of what awaited the world just three years later. In 2017, I was inspired by reading about young people who were critically ill and forced to accept medical care decisions thrust upon them by older people. Most of the cases of the youngsters in that post suffered from cancers of some kind, but a couple of them had other medical problems.

In several cases, the young patients’ parents were religious or wanted to try a more “natural” approach to healthcare. The parents were taken to task by medical professionals who wanted to override their decisions. In one case, the patient was a 17 year old young man who was deemed mature. He didn’t like the chemotherapy that was prescribed to treat his Hodgkin’s Disease, so he tried to refuse it. Doctors sought to force submission by legal means. In the end, the young man’s case was the inspiration for “Abraham’s Law” in Virginia, which allows older teenagers and their parents to refuse medical care or choose alternative therapies.

It amazes me now to read about these controversial cases involving young people, especially given that COVID-19 wasn’t on the radar at the time. Nowadays, the term “medical freedom” is a hot topic, as people fight over whether or not vaccinations against the coronavirus should be mandatory for all who can safely take it. On one hand, there’s a group of people who want to be able to make all medical and healthcare choices for themselves, although a lot of the people in the anti-vaccine group curiously draw the line at abortions for other people. On the other hand, there’s a large group of people who fear the rapidly spreading COVID virus that has, so far, killed over 650,000 Americans and well over four million people worldwide. That group believes that people should be required to get vaccinated.

Although I am all for vaccination and I do believe that the vaccines are saving lives, there is a part of me that empathizes with those who don’t want to be forced to take it. I don’t think it’s smart to skip the vaccines. Many of the arguments I’ve heard against the vaccines seem to be mostly based on misinformation and conspiracy theories. A lot of people worry that there will be terrible side effects to the vaccines. Or they know a guy, who knows a guy, who knows a guy whose balls shriveled up and fell off after the first shot. Personally, I think those arguments are pretty lame. But I also genuinely don’t like the idea of forcing people to do things. I wish those kinds of rules weren’t necessary, and more people would cooperate simply because it’s the right thing to do.

I’ve read many stories of people who took a “wait and see” approach to COVID-19 and are now dead. Some of the saddest stories involve people who had young children or newborn babies. I’ve read at least three tragic stories about parents who have left large broods orphaned because of COVID. I’ve also read a lot of sad stories about people who are sorry they didn’t get vaccinated.

And I’ve also read about many conservative radio talk show hosts who have either gotten very sick from COVID or have actually died. There was a news story just this morning about a conservative talk show host named Bob Enyart, who had spread false information about COVID-19. He got sick and died. Enyart was vehemently against vaccine and mask mandates, and last year, he successfully sued the state of Colorado over mask mandates and capacity limits in churches. Enyart was all about making choices for his own health, but as a very vocal opponent of abortion, he apparently didn’t mind making healthcare choices for other people.

Curiously enough, Enyart was a Christian pastor, and he once gleefully read the names and obituaries of people who had died of AIDS while he played “Another One Bites the Dust” by Queen. What a charming man… huh? As Mr. Enyart was the 5th conservative radio talk show host to die of COVID in the past six weeks, perhaps the Queen song is appropriate theme for him and his ilk.

This morning, I ran across an interesting thread in the Duggar Family News Group. Someone, yet again, compared the COVID vaccine and mask mandates to seatbelt laws.

I disagree with this comparison. I also am old enough to remember when the seatbelt laws went into effect. At the time, I was pissed off about them. Don’t be too hard on me, though. I was a teenager.

I have mentioned before that I don’t think the COVID-19 mask and vaccine mandates are the same as seatbelt laws. I mean, yes, I can see how people would make the comparison, but I don’t think it’s a very accurate one. When I was a child, I hated seatbelts and would only wear them if I was forced to… and generally that only happened when my dad was feeling controlling. In those days, a lot of people didn’t wear seatbelts. They weren’t as comfortable as they are today. Thankfully, as time has passed, the technology behind them has improved. I doubt we will ever be rid of the damned things. In any case, seatbelts are kind of different from masks and vaccines, as they don’t involve being injected into someone’s body, nor do they impact normal living and communicating as much as face masks do. You only wear them in the car. They don’t interfere with speaking, hearing, seeing, eating, or breathing.

And before anyone tries to tell me that masks don’t impede breathing, let me just stop you right there. I know they don’t. But some people do find wearing them oppressive, and the anxiety that comes from that might impede breathing. There are some people who can’t wear them for whatever reason… not too many, I will admit, but there are some. Likewise, some people can’t wear seatbelts for whatever reason. A lot of times, the reason has to do with being very obese, but sometimes it’s because of an injury or an occupation.

The point is, I don’t think seatbelts will ever go away. However, many of us hope the masks will go away, if and when the pandemic ends. Personally, I don’t see the pandemic ending happening unless a lot more people get vaccinated. But even though I think vaccines are an excellent idea and I would strongly encourage people to get the shot(s), I also feel uncomfortable with government mandates on things like medical care. Because, there are people who can’t or shouldn’t get vaccinations, for whatever reason. I also understand that some people are genuinely concerned about government overreach. Their concern isn’t entirely unfounded, although some of the arguments I’ve read are pretty ridiculous.

One thing I don’t think is helpful, though, is being rude and insulting to those who disagree. I don’t like the dogpile approach to trying to change minds, either. The above photo was shared in the Duggar Family News group, and it did invite contention. One woman posted this:

I remember when this page was about snarking on fundamentalist Christian families on television rather than promoting the divide of human kind based on personal choices they make for what they put in their own bodies.

That comment led to this response…

Even though I understand the frustration behind this response, I don’t think it was helpful.

The original poster was offended by the image. She expressed her dismay that a total stranger would wish death on her. Then, a big, long thread of comments ensued, with the vast majority of people name-calling, hurling insults, being sarcastic, and typing “all knowing” responses at the original poster. Her response, rather than being convinced, was to dig in her heels and respond in kind. Then, she either got booted from the group, or left on her own accord.

The last comment ends with the person telling the OP not to go to the hospital because she doesn’t believe in science. I disagree with that attitude, too. If someone gets sick with COVID, I don’t want them out on the street, infecting others. I’d rather see them getting treatment.

So… what exactly was accomplished by this contentious exchange? Not much, that I can see. I think a more respectful and friendly dialogue might have done more to foster group harmony. Maybe no one’s mind would have changed, but at least there would be listening and constructive communication going on, rather than flaming and hair flip rage exits. No matter what, I don’t think it’s appropriate to wish death on people simply because they disagree with you. On the other hand, I do understand the sentiment and the frustration behind such responses. I will also admit to occasionally being a hypocrite when I get pushed too far. I’m human, after all. I do try not to start out with abuse and insults, though.

I have never liked “nannyism”, especially in laws. However, I understand why “nanny” laws are often necessary. Many people, when left to their own devices, will not do things that are in their own or the public’s best interests. I have always hated wearing seatbelts myself, but I do understand why they’re necessary. I also have a husband who will turn into Pat Boone if I don’t wear one. So I do comply with that rule.

Even though I fucking hate face masks, I comply with that rule, too. However, I hope someday it will no longer be necessary. And I had no issues whatsoever with getting vaccinated against COVID, because as a student of public health, I know the theories behind vaccines and have seen concrete evidence that most of them work. That doesn’t mean I’m not open to learning new information, nor does it mean I’m not aware of potential risks from certain vaccines.

Below is advice given to people during the Spanish Flu pandemic. I agree with most of it, although I don’t think it matters whether or not someone “obeys cheerfully”, as long as they are compliant.

From 2018, when the Spanish Flu was killing people. They used masks then, and the masks eventually went away. I hope the same for COVID-19.

My late beagle, Zane, was a prime example of a dog who didn’t do well with vaccines. He had mast cell cancer (immune system cancer) that eventually progressed to lymphoma. He was allergic to at least one vaccination, and would get tumors when he had others. I actually think some people over-vaccinate their pets, and some of the encouragement to vaccinate is due to the revenue vaccines generate. Dogs with mast cell tumors should not get any unnecessary vaccines. I’m a little concerned about Arran, because he is due for a rabies shot next month, and the rabies shots can stimulate mast cell tumors. Arran has also had mast cell tumors, though not to the same severity Zane had. Because of Zane, I have some sympathy for people who are against vaccines, even though I think their reasoning is wrong in most instances. We don’t vaccinate people like we do pets, anyway. We certainly don’t get as many shots as they do.

Although I do believe in vaccine efficacy, I am not one to run out and demand the latest and greatest shots, nor do I get every vaccine available. For instance, I’ve never in my life had a flu shot. I would get them if I spent more time around other people, though. COVID-19 is different, at least right now. There’s hope that the virus will eventually weaken and become less dangerous, as flu mostly did. But at this point, it’s not getting better. Many people are getting sick and dying, and from what I’ve read, COVID-19 is a pretty nasty way to go.

I do think sometimes we need laws to protect ourselves and each other from those who lack insight, perspective, and wisdom. On the other hand, I agree that people should be free to make choices, whenever possible. Either way, medical freedom doesn’t do a damned bit of good to anyone who is dead. So I do hope that those who are against vaccines will wise up and get with the program. I understand wanting to wait and see how other people do with the shots, but time is running out… I have read too many sad stories about people who waited too long and got sick. There are too many stories about orphaned children, and bereaved spouses, siblings, and parents. And too many people are becoming downright mean and NASTY toward total strangers. I wish we’d all remember that when it comes down to it, we’re in a community. And being in a healthy community requires compassion, responsibility, and solidarity.

That being said… sometimes people DO need protection from crazy beliefs. Case in point, an old Mr. Atheist video I came across yesterday. Religion and politics make people do stupid things, even to their children. So while I am mindful of the so-called slippery slope when it comes to government overreach, I also think some people need to be saved from “freedumb” ideas.

JWs are just one group that have beliefs that can harm others… especially their own followers.
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ethics, healthcare, politics

A most unproductive attitude…

Last night, a Facebook friend shared the following meme.

Hmmm… I’m not sure this works.

I understand people not wanting to see medical care being “wasted” on the non-compliant. It’s heartbreaking to read stories about people with cancer being turned away from hospitals because of unvaccinated people taking up beds as they die of COVID-19. I get that, in spite of overwhelming evidence that the vaccines help prevent severe illness and hospitalization, some people just aren’t on the bandwagon yet. They have this idea that there’s a conspiracy going on and that Democrats are trying to grab power and quash individual liberties.

I’m also not so naive that I don’t understand the concerns of people who are against mask and vaccine mandates. Personally, I don’t like the idea of being forced to wear a mask or be vaccinated against my will. But I also don’t like the idea of being hospitalized, helplessly gasping for air while my husband wrings his hands in anguish. I may not mind exiting the world as soon as possible, but COVID-19 is not the way I would like to go. So I was all for getting vaccinated as soon as I could, which in my case, was in May and June. I will also willingly get a booster. And while I still hate masks and find them depressing to look at and wear, I do cooperate.

Every day, I read another story about someone who was preaching against the vaccines getting COVID-19 and dying. Last week, it was conservative radio talk show host, Phil Valentine. Like several others before him, Phil Valentine had the false idea that COVID-19 is a hoax. He wrote on his blog that if he caught it, he’d have “way less than one percent” chance of dying. Sure enough, on July 11, 2021, Mr. Valentine announced that he had COVID-19. But he was upbeat, and vowed to be back on his show within a day or two.

“Unfortunately for the haters out there, it looks like I’m going to make it,” [Valentine] wrote. “Interesting experience. I’ll have to fill you in when I come back on the air. I’m hoping that will be tomorrow, but I may take a day off just as a precaution.”

Within two weeks, Valentine was hospitalized and in serious condition. His radio station, Nashville based 99.7 WTN, announced that Valentine had changed his mind about the vaccine and was urging people to get the shot(s). Unfortunately, it was too late for the late radio talk show host. He died this past Saturday. Interestingly enough, I see that Valentine was born in Nashville, North Carolina, and died in Nashville, Tennessee. He had been ventilated since July 28th, all to no avail.

So anyway… after reading yet another tragic story about a dead vaccine skeptic, I had a look at the comments. A woman named Nicole wrote this:

Comments here just show how fine the line is between dems and reps…as in there in no line at all. Hateful people hate, no party affiliation necessary.

At this writing, Nicole’s comment has over 1100 reactions, some of which are “laughing”. I honestly don’t see what’s so funny about someone else dying of a virus. Many people also responded to Nicole in a rude and disparaging way. I noticed that she kindly and patiently answered some of the people who “laughed” and “raged” at her, preaching about how they no longer had any “sympathy” for people like Phil Valentine. My heart went out to her, so I wrote this:

I get it. I feel the same way. Whether or not people want to acknowledge it, he had loved ones who are grieving. I have a hard time accepting people on a moral high horse when they are literally laughing and cheering about a man’s death. I am vaccinated and believe in science over foolishness, and I get tired of the craziness spewed by the ignorant. But I also hate seeing how mean people have become, especially as they preach to others about compassion and forbearance.

Thanks for being brave enough to speak up. I am with you.

The truth is, Phil Valentine is not going to read or care about the hateful comments. But he’s got loved ones and friends who are seeing all of this stuff. I don’t think reading hateful, derisive, mean spirited comments are going to convince them to change their views. Moreover, I also don’t think the idea of denying medical care to people with communicable diseases is the best way to convince cooperation. All being “mean” does is shut down communication and make people feel angry… and hopeless.

Also… by denying medical care to people with COVID-19, we would simply be prolonging the pandemic. COVID-19 is contagious. Even if a person is totally recalcitrant and belligerent about COVID-19, they can still spread the disease to others if they get it. Not helping that person is only going to put other people at risk. Some of those at risk will include children, elderly people, those who can’t be vaccinated for medical reasons, and those who are vaccinated, but immunocompromised. So, I would never be onboard with denying medical care to people with COVID. I think that attitude only puts other people at risk. I do, however, understand the sentiment. It’s frustrating to see so many people not understanding the very serious risk COVID poses to everyone and not wanting to do their part to end the pandemic.

What I think could eventually happen if things don’t get better soon, is that non-compliant people will be arrested and either forced into isolation, or compelled to accept care and vaccination. I know that’s a chilling thought for people, but it has happened before with other pandemics and it still happens with certain communicable diseases. I have seen that it’s starting to happen in certain countries, like Singapore, where personal liberty is not as important as the welfare of the whole community.

For example, when I was getting my MPH/MSW at the University of South Carolina, I was classmates with a woman whose field placement was working with people who were being detained because they had tuberculosis and refused to get treatment. These folks were not being held by law enforcement, per se. They were “locked up” because they had a communicable disease and would not cooperate with public health authorities by either isolating, or getting treatment.

I remember my classmate talking about what it was like to deal with these folks who, for one reason or another, decided that they would not voluntarily take the very powerful antibiotics used to treat TB. I distinctly recall her telling our class that the people were “pissed off”. And yet, there they still were, locked up, not necessarily because they had committed a crime, but because they put other people at risk.

Here’s a more recent example. About seven years ago, Ebola was the communicable disease that was in the news. A nurse named Kaci Hickox had returned to the United States from Sierra Leone, where she had been caring for people with Ebola. She supposedly had a fever upon arrival to the United States, so she was forced to quarantine in New Jersey for three days. She then returned to her then home state of Maine, where she was requested to self-isolate at home, which she also refused to do, as she had tested negative for Ebola.

A year later, Hickox sued then New Jersey Governor Chris Christie, former state Health Commissioner Mary O’Dowd and other Health Department employees for false imprisonment, violation of due process and invasion of privacy. She claimed that there were no medical or epidemiological grounds to hold her. Interestingly enough, Chris Christie is a Republican. At the time she was in the news, Hickox was “loathed by Republicans.” The late Rush Limbaugh had harsh words for her after Hickox returned to Maine, where she very publicly flouted voluntary quarantine. Meanwhile, she got praise from more liberal outlets.

“Is this not a little bit sanctimonious?” Limbaugh said at the time. “I mean, here you volunteer and you let everybody know, by the way. … ‘I am a good person. I have volunteered to go to Africa, and I am helping Ebola patients. Look at me. See me? I am a good person.’ You come back, ‘I have just returned from Africa helping Ebola patients, and you are not going to quarantine me so that I can’t be noticed.’”

Hickox eventually settled the lawsuit, and new protections for quarantined travelers were introduced. I’m sitting here shaking my head, though. In 2014, Republicans were screaming for Ebola quarantines and Democrats were lamenting the potential loss of civil liberties. And now, in the COVID era, the opposite is happening. It really shouldn’t be controversial or political, though. It’s a matter of basic decency and consideration for other people, isn’t it? I guess some people are fine with denying other people their civil rights, as long as it doesn’t affect them personally. And some people are fine with flouting public health rules, if it’s they who are being asked to quarantine.

I wrote about Kaci Hickox on my old blog. At the time, I was of a mixed mind about her situation. I was definitely understanding her points about civil liberties. However, at the same time, my background in public health made me concerned about her risk of spreading a deadly disease to Americans. I looked up Kaci Hickox last night. I see that she, too, has a master’s degree in Public Health. I wonder how she feels about COVID-19. In this article from March 2, 2021, a reporter states that Ebola is deadlier than COVID-19 is. That was before the virus had mutated to what it is today. Moreover, according to the article, unlike like COVID-19, asymptomatic people don’t spread Ebola. But Ebola is still a very nasty disease, just as COVID has proven to be.

Anyway… I just think that we should all try to be as compassionate as possible. I don’t think it’s ethical to deny medical care to people, even if they behave in a foolish or offensive manner. I get being offended or annoyed by the willfully ignorant. God knows, I post all the time about my irritation with people who have unhelpful attitudes. But when it comes to getting people to cooperate, I don’t think it’s helpful to laugh at them as they die or express hatred for them. All that does is divide people. It’s in everyone’s best interests to be cooperative. At least for now, people still have the right to choose whether or not they will be vaccinated. It would be good if some of those who hesitate figure it out for themselves that not getting the shot could really mess up, or even end their lives.

As for Phil Valentine… it is a shame that he didn’t comply sooner. But at least at the end of his life, he tried to change hearts and minds. For that reason, I think people should be kinder regarding his memory. When it comes down to it, this issue is really NOT about politics. It’s about health, and potentially life and death.

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