book reviews, mental health, narcissists, psychology

A review of My Mother, Munchausen’s and Me: A true story of betrayal and a shocking family secret by Helen Naylor…

Today, I made a concerted effort to finish reading my latest book, My Mother, Munchausen’s and Me: A true story of betrayal and a shocking family secret by Helen Naylor. This book was just published in November 2021. I decided to read it because I’m a sucker for true stories, especially when they are about people who have psychological issues. I’ve always found Munchausen’s Syndrome to be a fascinating disorder, although this was the first time I had seen a book about Munchausen’s Syndrome and not its related malady, Munchausen’s By Proxy.

Munchausen’s Syndrome, also known as “factitious disorder imposed on self”, is a psychological disorder in which a person either feigns illness or injury, or deliberately makes themselves ill. They do so to get narcissistic supply, attention, comfort, or sympathy from healthcare providers, their friends, and especially their families. People with Munchausen’s Syndrome exaggerate any real symptoms they have, often insisting that physicians do very thorough examinations, procedures, and tests. They are often hospitalized, and they have a tendency to know a lot about diseases.

If you search this blog, you’ll find that I’ve already reviewed a couple of books about Munchausen’s By Proxy (MbP). One book was written by a woman who was raised by a narcissistic mother who constantly and deliberately made her ill so that she could get narcissistic supply from medical professionals. The other is a true crime book about a social worker who adopted two babies from Korea in the 1970s and deliberately made them sick, resulting in the death of one of the babies. Again, it was so she could get attention and regard from medical professionals, praising her for her devotion and dedication to her children. MbP is an especially horrifying disorder, as it’s often imposed on people who are helpless, like children, elderly people, or the disabled.

In British author Helen Naylor’s case, she was not a victim of her mother doing horrifying things to her physically in order to get attention. Instead, it was Helen’s mother, Elinor, whom Helen describes as a narcissist, who was making up illnesses and demanding attention from her family and friends. Elinor is now deceased, but Helen writes that her mother pretended to have chronic illnesses for about thirty years. Helen’s father, who predeceased his wife by some years, actually was debilitated with a serious heart disease. When he passed away, Helen, as the only child, was left to take care of her mother, whose constant pleas for attention and emotional outbursts caused real hardships for Helen, who was also married and raising two small children.

For years, Helen endured the constant dramas and stresses surrounding her mother’s mysterious illness, called ME in the book. I looked up ME and found it defined as myalgic encephalomyelitis, perhaps better known to us Yanks as chronic fatigue syndrome (CFS). CFS made a lot of news back in the late 1980s and early 90s. Elinor Page had supposedly contracted ME at around that time. The ME made it difficult for Elinor to care for young Helen, whom she described as a “difficult child”. Helen writes of her mother not having the energy to take her places or spend time with her. Or, so it seemed, anyway.

Throughout her life, Helen’s mother required her daughter to attend to her every need. She convinced many people that she was very sick, and Helen soon found herself being scrutinized and judged by other people, who expected her to take care of her mother. Most of those people never saw Elinor’s true personality. Most of them never saw Elinor when she was full of energy and fully capable of socializing and taking care of herself. They only saw the fake persona she put on in a pathetic bid for sympathy and attention. Elinor would do things like deliberately starve herself so that she looked sicker and weaker. She would stage falls near emergency pull cords and insist that she was in dire need of medical attention. She would get the attention, and nothing notable would be found. Elinor would demand full time “carers”, but she didn’t really need them. So she would call her daughter, who was very busy with her own life and raising her own children.

After Elinor died, Helen found her mother’s diaries, which she kept quite religiously. It was after she read them that Helen realized just how psychologically sick her mother was, even though she insisted that she was debilitated by ME and later by Parkinson’s Disease. Elinor did have mild Parkinsonism, which is not the same as the full blown disease. But Elinor wanted to be regarded as very ill, and she would do all she could to convince people that she was unwell and needed hospital care. I think it’s important to point out that again, this book is set in the United Kingdom, which has the National Health Service. So, while these repeated medical episodes would cost a lot in the United States, money to pay for Elinor’s repeated medical visits and hospitalizations was much less of an issue in England.

I’ll be honest. I found this book compelling, but kind of hard to get through. There were a few parts of the book at which I started to think I didn’t like it very much. But then, toward the end of the book, when Helen writes about the extreme drama her mother put her through as she was trying to raise her children, my heart went out to her. I realized just how incredibly toxic that situation was for everyone involved. Yes, it was very hard on Helen, her husband, Peter, and their two children, Bailey and Blossom, but I think it must have been very hard on Elinor, too. At one point, Helen writes an insightful comment about what had caused Elinor to behave in this way. She was desperate for attention, and must have felt she would die without it.

Of course, it’s easy to have sympathy for the person with Munchausen’s Syndrome when you’re not the person having to deal with their constant emergencies and pleas for attention, coupled with the angry tirades, dismissive hairflips, and outright dramatic scenes that come from narcissists. Having heard from my husband’s daughter about what it was like for her to grow up with a narcissistic mother, I definitely felt for Helen Naylor.

It really is tough when your mother is not a mom. And you are forced to grow up years before your time, taking care of things that children shouldn’t have to worry about. And that demand for duty continues even after you’ve come of age, left the house, gotten married, and have small children of your own to tend. In my husband’s daughter’s case, at least there are siblings– notably, her older sister, who has been recruited to stay home and take care of their mother and youngest brother, who is legitimately disabled. Poor Helen was an only child. And her mother had enlisted a number of “flying monkeys”– friends who were there to help do her dirty work, guilting, and grifting. Helen Naylor didn’t have a “mum”– as she put it. She had a mother who parasitically fed off of her own daughter– for narcissistic supply and to serve as an emotional punching bag. Later, when she found her mother’s diaries, she realized that not only had her mom been faking everything for decades, but Helen was also severely neglected as a helpless baby. She suffered an unexplained and untreated broken arm at six months old, and her mother would leave her alone for hours while she went out drinking.

When I finished My Mother, Munchausen’s and Me this afternoon, I came away with a basically positive opinion of it. It’s reasonably well-written and offers a different look at Munchausen’s. Again, most of the books I’ve seen about Munchausen’s are written about mothers who make their children sick. This book is about a woman who deliberately made herself sick or schemed to make herself look like she’d taken a fall. She fooled a lot of people, except for those who caught her when her facade had slipped. I would imagine that when that happened, it was also traumatic and embarrassing for Helen, who had to deal with the fact that her mother did this stuff. It’s pretty clear to me that Helen is normal and just wants to be a good mom and wife.

People who have to deal with narcissists often hear about going “no contact”. I’m pretty sure that Helen’s husband eventually advocated for that. Or, at least not coming right away when Elinor called. But it’s very hard to turn your back on your own mom. I’m sure that is what kept Helen trapped for so many years. Now that her mother is dead, Helen no longer gets the dramatic phone calls from her mother or people taking care of her mother or worse, finding out that her mother has been hospitalized or moved days after the fact. She no longer has to deal with her mother’s friends, trying to horn in on overseeing her mother’s care and take her things. The traumatic memories linger, however, and I’m sure she is still haunted by them. When I stop and think about just how much this must have been for Helen to deal with, it just blows my mind.

Anyway… I think My Mother, Munchausen’s and Me is well worth reading for those who are interested in psychology, narcissists, or unusual psychological disorders. I will warn that this book is written in a distinctly British style, so some of the terminology and slang may be foreign to American readers. Personally, I found this book kind of hard to finish, but I appreciated that it offers a different perspective of people who need attention so badly that they have to make themselves or other people sick.

It’s pretty clear that Elinor is primarily very narcissistic, but she has a number of other behaviors that augment that already unbearable personality trait. She has the Munchausen’s, but there are also elements of a potential eating disorder and perhaps body dysmorphic disorder, as well as depression and anxiety. She must have been a miserable person, and I am sure she was very miserable to be around. I hope wherever she is now, she’s finally resting in peace. And I hope writing this book helps bring peace and closure to her long suffering daughter.

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book reviews, healthcare

Repost: My review of Sickened, by Julie Gregory…

Here’s a repost of a book review I wrote for Epinions.com in 2005. It appears here “as/is”.

Over this past weekend, my husband Bill and I ventured out to the local Borders bookstore in search of a DVD of the fabulous film Baraka. After I got my hands on a copy of the movie, I started looking through the books, leaving Bill to continue mulling over the movies. I wandered into the psychology section, where I happened to run across a misplaced copy of Julie Gregory’s 2003 book, Sickened: A Memoir of a Munchausen by Proxy Childhood. Those of you who regularly read my book reviews may know by now that I’m a sucker for books about psychological disorders, especially personal accounts. Gregory’s book looked like it was right up my alley. Unlike a lot of folks, I had heard of Munchausen by Proxy (MbP). But I hadn’t ever read a personal account by someone who has actually suffered through it.

For those who don’t know about MbP, Gregory has included a foreword written by Marc Feldman, MD. The foreword explains in laymen’s terms what Munchausen by Proxy is. I’ll try to offer my own take on what I understand MbP to be. Simply put, MbP is a syndrome in which a person purposely and repeatedly makes another person ill. Victims of MbP are repeatedly submitted to medical care in which they endure endless tests, procedures, hospitalizations, and surgeries as doctors try to find the sources of their mysterious and debilitating symptoms. Most of the time, victims of MbP are children, and the perpetrators are their mothers, as was true in Julie Gregory’s case. Gregory was also abused by her maternal grandmother. Ironically, her parents moved her away from her grandmother in order to protect Julie from her grandmother’s abuse.

Julie Gregory was lucky enough to survive her ordeal and make it to adulthood relatively healthy… at least physically. Born to “crazy” parents, Dan and Sandy, Gregory spent most of her childhood in the backwoods of southern Ohio. Her mother, Sandy, had also endured a tough childhood and was, as a teenager, initially married off to a much older man named Smokey. Smokey taught Sandy how to trick ride horses and pose as he threw knives at her. When Smokey later died and Sandy became a widow while still in her twenties, she found herself taking up with Julie Gregory’s father, Dan. Dan had spent a very short time in Vietnam before he was exposed to Agent Orange and medically discharged. Julie literally describes her father as “crazy”, but after reading her book, I was left thinking that her mother is far crazier.

Trying to convince people that people in the medical community that her daughter suffered from heart problems, Sandy Gregory regularly shuttled Julie to doctors throughout her childhood. When a doctor found nothing wrong with Julie, Sandy simply carted her off to the next one. She gave Julie pills, the identity of which Julie never identifies by name. She tells Julie how she’s supposed to be feeling and admonishes her to “act sick” for the doctors so that they can help her “get well”. She starves Julie as she forces her to work very hard so that Julie is chronically tired and feeling weak. Julie also misses many days of school, almost failing a grade because of her chronic absenteeism.

Sandy Gregory, who simultaneously took in foster children and war veterans as a means of making money, pored over medical books and became well-versed in the jargon so common in a medical environment. She convinced a cardiac specialist that Julie needed to be catheterized. Gregory writes of this experience she endured as a skinny, fragile 13 year old child at the Ohio State University. The hospital made her feel safe. She was fed, cared for, but also left alone. She didn’t want to leave the safety of the hospital and go back home to her parents.

As I read this book, I really felt sorry for the child Julie Gregory was. It seemed like no one had a clue what she went through. And when Julie finally did speak up as a teenager, after years of enduring her mother’s sickness, she ended up being shuffled into the state’s child welfare system. She poignantly describes the plight of teenaged children who are in “the system”, making the point that even though she had done the right thing by talking to a caseworker about what her parents had been doing, she ended up being punished for her efforts. It almost made me want to become a foster mom myself.

Sickened is a fast and interesting read. Julie Gregory writes about her experience using vivid prose and humor. She includes pictures of her family as well as a sampling of medical notes and letters from the many doctors she saw over the course of her childhood. I got a good idea of what Julie’s family was like, particularly her mother, who really sounds like she wasn’t playing with a full deck. Julie Gregory does a fine job of capturing her mother’s voice so that I was able to get a real sense of who her mother was. And Julie Gregory has a knack for colorful similies and descriptions so that her story held my attention.

With that said, though, I did find a few weaknesses in Sickened. First of all, I think that this book could have used a good editor. I noticed that at times, Gregory wrote in past tense. At other times, she wrote in historical present tense. It wasn’t enough to be confusing, but it was noticeable and somewhat annoying. Secondly, I think this book is a little short on content. I would have liked to have read a little more about MbP from Gregory’s perspective. She does include, toward the end of her book, the story of how she came to figure out that she was a victim of MbP.

Today, Julie Gregory is supposedly an expert writer and speaker about MbP. Yet in Sickened, she provides very little analysis about MbP, instead forcing readers to rely on the foreword written by Dr. Marc Feldman. She doesn’t tell readers how she came to be an expert of MbP either, aside from just being a victim. According to the notes about her, Julie Gregory, who lives in Ohio, is a graduate student at the Sheffield University in England. She doesn’t reveal what she’s studying or what subject she earned her undergraduate degree in, so again, I was left wondering how she became an expert. Moreover, about two-thirds of this book consists of Julie Gregory’s experience as a child. The last third is the story of her progression into young adulthood. The last section feels rushed in comparison to the first. It seems to me that Gregory’s story is compelling enough that she could have taken a little more time with the ending and told her readers a little more about what her life as an adult has been like.

I also want to comment about this book’s cover art. It’s partly why I picked up this book in the first place. On the cover of the paperback edition of Sickened, a very young, skinny, Julie Gregory is pictured in a too short dress with a toy under her right arm and her left hand at her eye, as if the camera had caught her wiping a tear. She looks very vulnerable in the picture. Whoever decided to use it for this book’s cover obviously knew how to catch the consumer’s eye while pulling their heartstrings. The pictures in Sickened are also somewhat revealing of Julie Gregory’s plight. She’s shown in two snapshots posed as if she were a model. Gregory explains that her mother would periodically have her pose for Polaroids and then she would send the pictures to modeling agencies or keep on hand in case Sandy ran into “a nice older man” who wanted to see Julie’s pictures.

Although Sickened is a book about a fascinating and somewhat sensational topic, I haven’t run across any other personal accounts of people who have been affected by MbP. For that reason, I think this book is a worthwhile read for anyone who is interested in learning more about the MbP phenomenon. However, I also believe that anyone who really wants to learn a lot about MbP will need to do more research to supplement what they read in Sickened. This book is long on personal drama and short on facts and figures. The drama keeps the book entertaining, but the lack of facts and figures makes it less useful for those who want to learn something concrete about Munchausen by Proxy.

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