mental health, religion, tragedies

Switzerland and Utah have more in common than beautiful mountain views…

This post has to do with mass suicide. If you think you might be triggered, you might want to move on to your next Internet station.

The New York Times‘ headline said “4 Die After Falling From Balcony in Swiss Resort Town”. I was instantly curious, since I’ve heard the Swiss are even more anal retentive about safety and precision than the Germans are. Before I read the article, I said to Bill, “Someone is going to get sued into oblivion for this.” I said that because the headline made it sound like negligence was involved and I just assumed that a lovely family had plunged to their deaths because a balcony gave way. The strange truth was, this tragedy had nothing to do with a builder’s or safety inspector’s negligence. Apparently, these four people died on purpose. A fifth person remains hospitalized in serious condition.

The small group of people who died yesterday in Montreux, a beautiful resort town in western Switzerland near idyllic Lake Geneva, were not publicly identified in the article. However, the police believe they were French nationals and members of the same family, consisting of a 40 year old man, his 41 year old wife, his wife’s twin sister, and their 8 year old daughter. The couple’s 15 year old son somehow managed to survive the plunge from the seventh floor apartment from which they all apparently jumped.

When the article was published, the police were still trying to determine exactly what led up to the circumstances leading to this family’s fall from their balcony. According to the story, two police officers had knocked on the family’s door at about 7am. The officers were there to give the parents a summons involving the homeschooling of one of the children. Homeschooling is legal in Switzerland, but children who are homeschooled are still required to be routinely monitored by officials to determine their educational progress. When parents are out of touch with officials, police officers are tasked with issuing summonses. Evidently, this family was not allowing their homeschooled child to be checked.

After they knocked on the door, the police officers heard a voice from inside the apartment, asking them to identify themselves. Then, there was silence. As the officers were about to leave the building, a witness had called the police to inform them that people had fallen from a seventh floor balcony. A neighbor of the family’s stated that the family was very “discreet”. That makes me think that there was something weird going on, even before the adults apparently decided that suicide en masse was the answer to their problems.

I read some of the comments regarding this piece, and one lady posted that this story reminded her of an incident that happened in Salt Lake City Utah in 1978. Her comment is below.

This sounds like an instance in the 1970s involving a family who came to be known as “The Leaping Longos” after a mother and her seven children all jumped out of their hotel room window. It turned out that the father had killed himself the day before and their mother forced them all to jump in some weird type of suicide pact. They were practicing their own brand of religion based on the Mormon church and the father was also evading the authorities. 

This family likely all jumped to their deaths as well, but only after the authorities showed up. The authorities were only trying to establish what was happening with the children due to them being home schooled but it is very likely that they had something else to hide. Fortunately one son has survived, and once he’s able to talk about what happened I’m sure the full story will unfold.

The poor kid has become an orphan and I hope he’s able to recover because it would be even more tragic if he’s permanently impaired.

I was around in 1978, but I was a young child at the time. Obviously, I had never heard of the “Leaping Longos” before I read the above comment. I decided to look them up to see if there was any information about this family. Sure enough, I found the story after a couple of minutes of looking. Here’s a link to a 1993 era article by Deseret News about the lone survivor of the Utah incident. In that case, the lone survivor was a fifteen year old girl. Like the rest of her family, Longo changed her name; in the Deseret article she is called Rachel David.

On August 3, 1978, the David family (originally identified as the Longo family) made the bizarre decision to leap from an eleventh floor balcony at the International Dune Hotel in Salt Lake City. The family had been living in the hotel for about a year, when the patriarch, 39 year old Immanuel David (originally named Charles Bruce Longo), committed suicide by carbon monoxide poisoning. Three days after the suicide, 38 year old Rebecca David and her seven children either jumped or were thrown from the balcony. The lone survivor, Rachel, spent many months in a hospital before she was placed in foster care. She was wheelchair bound in 1993, when she was interviewed by the hosts of the television tabloid show, Inside Edition.

In 1993, Rachel David still believed that her father was God and would be returning to Earth. She also said that she had willingly jumped. She also said that she had been trying to follow the suicide order and, as of 1993, had attempted to kill herself many times. Another article, circa 2000, describes the survivor as “brain damaged”. At the time that article was written, Rachel David was still living with “remnants” of the House of David near Denver, Colorado.

Below is a screenshot of a news article that was written in 1978, just after this event took place.

Freaky story… I wonder if this French family was involved in a similar cult.

And here is a broadcast news item about the 1978 Utah incident…

I can’t even imagine how horrifying this was to witness…

Why do these culty types always gravitate to the name “Immanuel”? Especially when they have ties to Mormonism? According to the news report, David was an excommunicated member of the LDS church. The father was not employed at the time of his death, although according to the video, the bill for the $95 a day was paid on time and in cash, usually with $100 bills. The news story is astonishing, as the physician is very openly talking about the surviving girl’s injuries. We didn’t have HIPAA in those days.

As I listen to this surprisingly lengthy report, I’m confused by the discrepancies in the people’s names. According to the news article, the father’s name was Charles Bruce Longo, but this news report refers to him as Bruce David Longo. And then he changed his name, and all of the names of his wife and children were changed.

As for the French family in Switzerland, slightly more news has emerged about their apparently sudden and bizarre exit from Earth. Apparently, the mother in the French family was a dentist who had worked in Paris. Her sister was an ophthalmologist. The father worked at home. The family had been living in Switzerland for some time, and had residence status. The Daily Mail offers an article with some rather salacious details omitted from the more respectable newspaper articles. Apparently, the family used incense a lot, and ordered many packages. It will be interesting to learn more about why this tragedy occurred, and if this family has anything else in common with the “Leaping Longos” of Salt Lake City.

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ethics, healthcare, memories, Neighbors

Repost: Perpetuating the genetic nightmare…

I am reposting this piece from August 30, 2017, because it goes with the book review I reposted today. It appears as/is. Special thanks to Leevan Jackson who made the featured photo available through Creative Commons.

I have written a few times about my childhood neighbors, people who lived across the dirt road from us in Virginia.  In 1980, when we moved to Gloucester, they were a family of four.  There was a mother, father, brother and sister.  The father did not live at home.  He was in his early 30s and lived at the local psychiatric hospital in Williamsburg because he was suffering from Huntington’s Disease.   The mother was raising her children, twelve year old Michael and nine year old Leslie, by herself. 

In 1980, Michael was also suffering from Huntington’s Disease, having inherited the defective gene and developed the disease much earlier than most people with Huntington’s Disease do.  He died in 1982.  His and Leslie’s father died a couple of years after that.

I was eight in 1980.  I met all of these people when I was a child.  Leslie’s mother worked for my dad for several years until Leslie’s paternal grandmother died and Leslie’s mom inherited some money.  Leslie’s mom bought her own picture framing business and competed against my dad.  The business eventually failed.

Leslie and I weren’t close friends, but we did grow up together.  My parents included Leslie and her mom on a couple of family trips.  In 1985, I remember we all went to Kitty Hawk, North Carolina together.  I seem to remember Leslie and her mom coming with us to Natural Bridge, Virginia once, too.  I grew up waiting for the bus with Leslie and used to dog sit for her mom when they’d take trips to the Smoky Mountains.  Leslie was bright and talented and probably could have done some great things had she not been doomed to get Huntington’s Disease while still fairly young.

Leslie died in 2010, having battled the disease for several years.  She was 39 years old.  She’d given birth to three kids.  One of them died in a freak accident in 1995.  Leslie’s little daughter, just two years old, was accidentally run over by Leslie at the local Walmart.  For some reason, Leslie had allowed the little girl to stand up behind the driver’s seat.  If I recall correctly, she was just coasting forward to the drink machines and, for whatever reason, decided not to put the kid in a car seat.  Leslie had inexplicably left the car door open and the girl fell out and ended up under the car’s tires.  Her older child, then just three years old, was also there.  In 2012, when he was 21 years old, that child would also die in a car accident.  I have to wonder if the accident was really an accident or if the young man had started getting symptoms of Huntington’s Disease and decided to commit suicide. 

In 1996, Leslie had her third child, another son.  He is the only one of her children still living.  I have never met Leslie’s youngest child, but I know his family well.  I also know his dad, since he was in my class in school.  In the 80s, Gloucester was the kind of place where everyone knew each other.  I also knew of Leslie’s older son’s family, since his grandmother used to clean my parents’ house. 

Last night, I decided to look up Leslie’s sole surviving son.  I see that he recently became a father.  I have to wonder how much exposure he got to his mother when she was sick.  I didn’t see Leslie during those years because I left our hometown, but I do remember meeting her father and seeing her brother on a daily basis.  I remember what Huntington’s Disease looked like at an advanced stage.  It’s absolutely devastating.   

I just started reading a book about a woman who married into a family with the Huntington’s Disease gene.  The woman fell in love with her husband before he knew his mother had Huntington’s Disease.  She was dating him when he and his three older sisters found out why their mother wasn’t around when they were growing up.  She’d been in a psychiatric hospital.  The family patriarch wasn’t much of a father figure, so it was left up to the eldest daughter to take care of everyone.  Somehow, the four kids grew up not knowing that their mother had a genetic disorder.  I’m probably halfway through the book so far… The author decided to play the odds and have a son with her husband.

I learned in the book I’m reading that famed songwriter, Woody Guthrie, had Huntington’s Disease.  He had eight children, five of whom died young.  His second of three wives, Marjorie Guthrie, started what would eventually become the Huntington’s Disease Society of America.  Marjorie had four children with Woody, including famous singer-songwriter Arlo Guthrie.  Woody was married to his third wife for just a year before they split; he died in 1967 at age 55.  Woody was never really treated for his disease.  People thought he had schizophrenia or was an alcoholic, due to the extreme mood swings the disease caused.  Because he was famous, his death brought awareness to Huntington’s Disease.  It looks like Arlo and two siblings have escaped their father’s fate.  Today, I very much enjoy listening to music by Arlo’s daughter, Cathy, who plays ukulele in the duo, Folk Uke, with Amy Nelson (Willie Nelson’s daughter).

One of Woody Guthrie’s most famous songs…
Arlo Guthrie performs “Alice’s Restaurant”…
Cathy Guthrie and Amy Nelson performing as Folk Uke.

Every child who has a parent with Huntington’s Disease has a fifty percent chance of developing the disease.  Huntington’s Disease, although genetically perpetuated, is not like cystic fibrosis.  With CF, both parents must have the genetic defect.  Even then, a child born to parents carrying the CF gene has a one in four chance of getting cystic fibrosis, a one in four chance of being clear of the gene, and a two in four chance of being a carrier.  With Huntington’s Disease, it’s a one in two chance.  And if you have the gene, you will get the disease and likely die from it.  There is no treatment or cure for Huntington’s Disease.

A few months ago, I wrote a post about the ethics of knowingly passing along defective genes.  That post was inspired by Zach and Tori Roloff, stars of the TLC show Little People Big World.  They’d just had a baby and some people were saying that they shouldn’t have, since Zach has achondoplasia. Their son, Jackson, also has achondoplasia, which is a type of dwarfism.  For the record, I will say that dwarfism is not quite the same thing as something like CF or Huntington’s Disease.  A person who has achondoplasia can be basically healthy, though abnormally short.  CF and Huntington’s Disease are very serious and debilitating.

I think Huntington’s Disease, in some ways, is crueler than CF is.  Many people with CF are sick from babyhood.  They grow up sick, although some sufferers are much sicker than others.  They often know from a young age whether or not they will be affected by CF. 

A person with a family history of Huntington’s Disease can start life completely normal and not get sick until they’re approaching middle age.  They can develop lives, start families, have careers, and ultimately be stricken by a disease that makes them lose control of their bodies and their minds.  People with Huntington’s Disease grow up wondering if and when it will strike and whether or not they should get tested for the gene.  If they get tested, the news could be good.  They might not have the gene.  Or it can be bad; they have the gene and will eventually get very sick and probably die young.

Leslie’s family was devastated by Huntington’s Disease.  It seemed the gene in her family was worse than some others.  I remember hearing that her grandfather, whom I never met, had the disease.  He’d been adopted and never knew he had a genetic anomaly, so he and his wife, Vashti (whom I did meet), had a family.  I know that besides Leslie’s dad, at least one other sibling got the disease and died young.

I remember my mom telling me, quite emotionally, that Leslie’s mother should have had her daughter’s tubes tied when she was a baby.  I explained to my very practical mom that it would have been unethical to tie Leslie’s tubes.  What if she had been born clear of the gene?  There was a fifty percent chance that she had the defect, but there was also a fifty percent chance she didn’t.  She could have lived a completely normal life.  In 1971, when Leslie was born, I doubt the technology was there to know.  By the time genetic testing was available, I’m sure Leslie didn’t want to know.

I wish Leslie’s grandson much luck.  I truly hope he isn’t going to be afflicted by this terrible disease.  Life is a crap shoot.  He has an aunt and uncle who may or may not have had the genes for Huntington’s Disease and still died very young.  Not having the misfortune of being burdened by a genetically passed disease myself, I can’t even know what it’s like to live with the knowledge that I’m doomed.  Hopefully, Leslie’s son and grandson have escaped Huntington’s Disease.  That disease is a fate I would not wish on my worst enemy.  On the other hand, if Woody Guthrie hadn’t had children, we would be missing out on some great music.

I’ll write a review of the book when I’m finished with it.  It’s amazing what provides food for thought…  And it’s also crazy that I know so much about someone I’ve never met.  It’s not the first time this has happened, either. 

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